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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government
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Direct Support to 155,950 families and 74,225 professionals
Estimated Overall Outreach to 928,225 Families and 350,960 Professionals
Impacting 92% of families who are better able to partner with providers & navigate systems
Read more about the outreach, assistance, training, and impact of F2Fs in this 4-page report.
Despite the Affordable Care Act, there are still about 32 million nonelderly uninsured individuals in the US. About half of these could get coverage under Medicaid or could get help buying insurance through the Affordable Care Act. Find out why there are still families without coverage and what can be done about it in this new blog.
The NDNRC provides cross-disability information and support to Navigators and other enrollment specialists thereby ensuring people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces. However, the materials provided by the NDNRC are full of useful info that can be used at anytime. Included in each fact sheet are sections that provide a description of the health condition, types of providers that treat the condition, typical prescriptions, therapy needs, other needed medical services and supports, health insurance needs, and accommodations for meeting with a individual with that health condition. Check out these fact sheets:
Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.
The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal. This study describes the process that yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.
Learn more about the FCCA, including requesting access to use the tool here.
Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families. In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.
What's happening with the healthcare exchange in your state? What's a navigator? Will your state expand Medicaid? Looking to learn more about the ACA? Visit our resource page and sign up for our weekly news brief, Washington Update!