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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government
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The Health Resources and Services Administration (HRSA) recently announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers (F2Fs) in every state and the District of Columbia. This is great news for families of children and youth with special health care needs, who seek assistance and training from such centers in navigating services, identifying and applying for financing programs, and partnering in decision-making with their child's providers. In FY 2014 F2Fs provided information, assistance, and training to approximately 1.1 million families and 400 thousand professionals.
Family Voices National Center for Family/Professional Partnerships supports the network of F2Fs and other family leaders in increasing the capacity of families, Title V, and others to partner in implementing ACA; strengthening the primary care workforce through family/professional learning opportunities; and improving access to quality care through innovation in family-centered care, cultural & linguistic competence, and shared decision-making.
The Well Visit Planner is an online tool to help families prepare for their children’s upcoming well-child visits to the health care provider. It’s free to use; is available in English and Spanish; takes 10-15 minutes to fill out before each visit; and can be printed and taken to a visit to help your and your child’s doctor discuss your child. It helps families be better partners in their child’s health care, and helps health care providers better serve the needs of the child and the family.
Attend a free webinar to learn more about this tool.
Visit the Family Voices IMPACT website to learn more about this tool.
The Centers for Medicare & Medicaid Services (CMS) has announced the availability of funding to support Navigators in federally-facilitated Marketplaces (FFM), including State Partnership Marketplaces. Grantees will be selected for a three year project period, and a total of up to $67 million is available for the first year of the award. The funding opportunity announcement is open to eligible individuals, as well as private and public entities, applying to serve as Navigators in states with a FFM. It is open to new and returning HHS Navigator grant applicants, and applications are due by June 15, 2015.
The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal. This study describes the process that yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.
Learn more about the FCCA, including requesting access to use the tool here.
This 4-page report provides aggregated data on the activities of Family-to-Family Health Information Centers across the country from June 1, 2013 through May 31, 2014. Data includes families and professionals served, one-to-one assistance, trainings, information dissemination, impact on families, partnership activities, and self-reported impact on policies and programs.
Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families. In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.
What's happening with the healthcare exchange in your state? What's a navigator? Will your state expand Medicaid? Looking to learn more about the ACA? Visit our resource page and sign up for our weekly news brief, Washington Update!
Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.