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black_file.gif  Learn More about Family-to-Family Health Information Centers

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Quick Links

Evidence Base for Systems of Care for CYSHCN

Family-Centered Care: From Theory to Practice, Guidelines for Families of Children with Special Health Care Needs (CSHCN)

Family Voices: An MCH Stakeholder, An MCH Partner

Impact of the NCFPP on Programs and Services for families of CYSHCN

Friday's Child

Family-to-Family Health Information Center Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

Nominations Sought for HHS Advisory Committee on Minority Health
May 31, 2013
Nominations of qualified candidates to be considered for appointment as a member of the Advisory Committee on Minority Health are due May 31.
Using Visual Apps to Connect with Your Target Audience on Social Networks
May 30, 2013
This free MCHB webcast will describe how grantees can achieve maximum program visibility by showing vs. telling.
Oral Health and the Life Course
May 29, 2013
This free webinar is the fourth in the Maternal and Child Health Life Course Research Network’s series on The State of Life Course Health Development Research: Past, Present and Future and features Jim Crall, DDS, ScD.
How to Incorporate Best Practices in Family-Centered Care in Your Practice
May 29, 2013
This is the final webinar in a four part webinar series on how to effectively deliver care through the medical home mode. All webinars are free and sponsored by the American Academy of Pediatrics (AAP) and its National Center for Medical Home Implementation (NCMHI).
Input Sought on Transition
May 27, 2013
Policymakers, service providers, advocates, youth with disabilities and others are invited to join this online dialogue to improve transition outcomes for youth with disabilities.
Healthy People 2020: A Consumer Perspective
May 16, 2013
This free webinar will present Envision 2020 as well as the Consumer Perspective document and demonstrate how Healthy People 2020 objectives can influence and provide direction for improving systems and services for individuals with special healthcare needs.

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black_file.gif  More News from Family Voices

HP2020ConsumerPerspectiveFINAL-1.jpgChildren and Youth with Special Healthcare Needs in Healthy People 2020: A CONSUMER PERSPECTIVE

This document examines Healthy People 2020 objectives and serves as a companion to Envision 2020, the 10-year strategic plan for the Division of Services for Children with Special Health Needs in the Health Resources and Services Administration's Maternal and Child Health Bureau (MCHB). Genetic Alliance and Family Voices collaborated with MCHB to create this family and consumer perspective on the national health promotion agenda and how it relates to CYSHCN and their families.  This Consumer Perspective underscores the role of individuals, families, communities, government agencies such as MCHB, and other stakeholders in monitoring and implementing HP2020, including developmental objectives for CYSHCN. Download this document.

2011-2012-F2FDataRpt.jpg2011-2012 F2F Data Report

A one-page report that provides highlights of data reported by F2F HICs in 2011-2012 demonstrating the value and impact in helping families of CSHCN. Family stories are included as well as highlights of the 2009/10 National Survey of CSHCN. Download this report to learn more about the assistance and training provided by F2F HICs to families and the professionals who serve them.

2012 Activities & Accomplishments of F2F HICs

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This 76-page report summarizes the activities and accomplishments of F2F HICs from June 2010 through May 2011. Aggregated data on assistance and training provided by F2F HICs as well as other broader-scoped activities is included in this report along with descriptions of an exemplary activity from each F2F. State-by-state charts list the involvement of each F2F with specific initiatives and partners.  Download this report to learn about the critical value of these centers in helping families of CYSHCN.

NCFPP Provides:

Leadership

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The National Center for Family/Professional Partnerships (NCFPP) provides leadership in helping families and professionals partner together in decision-making by:

  1. Providing field based technical assistance to support a Community of Family Leaders: Family-to-Family Health Information Centers (F2F HICs), Family Voices State Affiliate Organizations (SAOs) and other family leaders in the states;

  2. Partnering with National Centers and other key stakeholders with whom we work to improve family/professional partnership opportunities; and

  3. Documenting the assistance and support F2F HICs provide to families and professionals in every state.