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Family Voices Newsletters Sign-up

Enter your email address below to subscribe to any/all of the following:

  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government

Quick Links

Building Partnerships: In-Person Regional Training Workshops

2015-2016 F2F Data Brief

Upcoming NCFPP Webinars

How The ACA is Helping Children with Special Needs and Their Families

Request to Use Family-Centered Care Assessment

Family-to-Family Health Information Center Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

Thursday, April 20, 3:00-4:30 pm ET: Engaging Diverse Families in Leadership for Systems Change

Sponsored by the National Center for Family Professional Partnerships

Tuesday, May 16, 7:30-8:30 pm ET: Working with Adult Allies

Sponsored by the National Center for Family Professional Partnerships

Savannah Logsdon-Breakstone from the Autistic Self Advocacy Network explores how youth self-advocates and adult allies can collaborate effectively. What works best? What are the pitfalls to avoid? What makes a good ally? What can I do if things go wrong? Learn all this and more, from an advocate who has been at both ends of the table.

May 3-4: Building Partnership Skills Regional Training, Salt Lake City, Utah

Sponsored by the National Center for Family Professional Partnerships

black_file.gif  More News from Family Voices

HIGHLIGHTS

BUILDING PARTNERSHIP SKILLS

Family Voices National Center for Family/Professional Partnerships (NCFPP), in partnership with the Statewide Parent Advocacy Network (SPAN), is pleased to offer a new training series targeted at building partnership skills for systems-level collaboration of diverse family leaders and group leaders, such as Title V Directors and others.

Serving on Groups is a workshop specifically targeted to family-led organizations who build leadership of families. This interactive Train-the-Trainer session will provide skills to train families who currently serve or want to serve on a decision-making group. Participants will learn about group processes, useful tools for groups, understanding data, and skills to maximize participation of diverse family leaders in systems-level groups.

Leading by Convening is an interactive workshop that will improve your skills to: engage all team members, including diverse parents, on key issues; build support for shared work; address the adaptive, or relationship-based, aspects of change; and achieve your improvement goals! This workshop is particularly targeted to leaders of groups, such as Title V directors or their designees who run advisory groups, work groups, etc. In this hands-on workshop, you will be provided with tools that have been proven effective through use “on the ground” with diverse stakeholders including family leaders.

May 3rd Serving on Groups, 9am-5pm; Train-the-trainer workshop

May 4th Leading by Convening, 8:30am-4pm; Group leader workshop

LOCATION:

Utah Family Voices at Utah Parent Center, 230 West 200 South, Suite 1101, Salt Lake City, UT 84101

This training is FREE. There is a $14 required lunch fee for the Serving on Groups workshop and $11 required lunch fee for the Leading by Convening workshop.

Washington DC Update 4/12/17Family Voices Washington DC Update logo - the US Capitol Bldg

Washington DC Update is a weekly e-newsletter sent to subscribers and is also archived on the Family Voices website.


Family Voices Receives New PCORI Engagement Award for Family Wisdom Project

Family Voices is pleased to announce the receipt of a new award from the Patient-Centered Outcomes Research Institute (PCORI) to establish a national learning collaborative supporting expanded capacity for research partnerships among family organizations and underserved communities. Fourteen Family-to-Family organizations (F2F) and Family Voices state-affiliate organizations (SAO) will each work with a vulnerable or underserved priority community in their state to develop meaningful PCOR partnerships, while providing support for each other and learning best practices through bi-weekly videoconferences. Family Voices is partnering with the University of Nevada at Reno in this initiative.

Read more about the project at the Family Voices website.


NCFPP Awarded Funding to Support Families in the Territories

Family Voices is pleased to announce supplemental funds to expand opportunities for families in the US territories, particularly those exposed to or affected by the Zika virus. These funds will allow us to expand collaboration efforts with multiple family groups and individuals, Title V, MCHB programs and agencies, and other professional partners in the territories as well as key national MHCB partners. This funding opportunity represents an important step forward for families in the territories toward the goal of engaging families in their child’s health care and as partners in programs and policies.


 

11/14/2016: NCFPP Brochure
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This brochure describes the work of the National Center for Family/Professional Partnerships, a cooperative agreement awarded by the Maternal and Child Health Bureau for the 2016-2019 grant period.  This work will reduce health care disparities of families of CYSHCN by making health care more family-centered through the development and support of family and youth leadership, particularly of those from diverse backgrounds, at the systems or policy-making level.


Medicaid Managed Care Fact Sheet11/14/2016: Medicaid Managed Care: Challenges and Opportunities for Pediatric Medical Home Implementation and CYSHCN
The National Center for Medical Home Implementation, in collaboration with the National Academy for State Health Policy, has created a fact sheet that discusses challenges and opportunities to provision of care for children and youth with special health care needs (CYSHCN) enrolled in Medicaid managed care. The fact sheet identifies states that leverage Medicaid managed care to advance the pediatric medical home model through payment incentives, technical assistance, and care coordination services. 


Webinar Series: Maximizing Insurance Enrollment in MCH

Starting OCTOBER 13, 2016: In partnership with Family Voices, the Association of Maternal & Child Health Programs is hosting a three-part webinar series to help maternal and child health advocates better prepare for the upcoming open enrollment period. The series, “Maximizing Insurance Enrollment in Maternal and Child Health,” will feature presentations from the Maternal and Child Health Bureau (MCHB), the Center for Consumer Information and Insurance Oversight (CCIIO), Enroll America, state Title V agencies, and health insurance navigators from the family leader community.  This 3-webinar series will run on October 13, October 25, and November 9 and feature different topics and speakers.


How The ACA is Helping Children with Special Needs and Their Families

A Georgetown University Health Policy Institute brief reports that when parents have coverage, their children will too.

SEPTEMBER 26, 2016: The Affordable Care Act (ACA) has helped both children with disabilities and their parents. Two reports from the Urban Institute (see Resources) highlight how two generations are benefiting from healthcare coverage under the ACA. Learn more in this blog.


Family Voices Awarded New 3-Year Cooperative Agreement

APRIL 13, 2016: Family Voices has been awarded a new three-year cooperative agreement from MCHB as the National Center for Family Professional Partnerships (NCFPP).  The new project period will be June 2016 through May 2019. Goals include:

  • Training and mentoring family/youth (especially those from diverse backgrounds) to serve on systems teams (in partnership with The Statewide Parent Advocacy Network (SPAN),
  • Assisting MCH programs to engage family/youth leaders, and
  • Helping F2F increase their capacity to assist families of
    CYSHCN and the professionals who serve them.

Download the Project Abstract.


2014-2015 Family-to-Family Health Information Centers Data Report

2014-2015 F2F Data ReportData aggregated from reports submitted by all 51 F2Fs summarizing their work from June 1, 2014 through May 31, 2015 (FY2015) demonstrate their:
- Direct Support to 155,950 families and 74,225 professionals

- Estimated Overall Outreach to 928,225 Families and 350,960 Professionals

- Impacting 92% of families who are better able to partner with providers & navigate systems

This report also includes state by state charts listing F2F partnerships, methods of assistance, involvement in specific initiatives, and additional sources of funding.  Read more about the outreach, assistance, training, and impact of F2Fs in this 12-page report.


Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.