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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government
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2/22/2017, 2:00-3:30 pm ET: Creating Systems For Individuals with Co-Occurring Mental Illness and Intellectual Disabilities
Sponsored by the Substance Abuse and Mental Health Services Administration
2/23/2017, 1:00-2:00 pm ET: Housing for People With Intellectual and Developmental Disabilities
Sponsored by the USC University Center for Excellence in Developmental Disabilities, Children's Hospital Los Angeles
2/23/2017, 4:00 pm ET: Back to the Basics: Medicaid and Section 1115 Waivers
NOTE: This is a new date/time. If you have already registered, you will not need to register again.
2017 Learning and Reflection Forums of the Leadership Institute for Cultural Diversity and Cultural and Linguistic Competence at the National Center for Cultural Competence:
3/16/17, 2:00-3:30 pm ET: Getting Buy In and Implementing Cultural and Linguistic Competence Organizational Assessment
4/6/2017, 2:00-3:30 pm ET: Developing Organizational Policies that Reflect the Values of Cultural & Linguistic Competence
2/22/2017: This Week in Washington Update:
Family Voices is pleased to announce supplemental funds to expand opportunities for families in the US territories, particularly those exposed to or affected by the Zika virus. These funds will allow us to expand collaboration efforts with multiple family groups and individuals, Title V, MCHB programs and agencies, and other professional partners in the territories as well as key national MHCB partners. This funding opportunity represents an important step forward for families in the territories toward the goal of engaging families in their child’s health care and as partners in programs and policies.
11/14/2016: NCFPP Brochure
This brochure describes the work of the National Center for Family/Professional Partnerships, a cooperative agreement awarded by the Maternal and Child Health Bureau for the 2016-2019 grant period. This work will reduce health care disparities of families of CYSHCN by making health care more family-centered through the development and support of family and youth leadership, particularly of those from diverse backgrounds, at the systems or policy-making level.
11/14/2016: Medicaid Managed Care: Challenges and Opportunities for Pediatric Medical Home Implementation and CYSHCN
The National Center for Medical Home Implementation, in collaboration with the National Academy for State Health Policy, has created a fact sheet that discusses challenges and opportunities to provision of care for children and youth with special health care needs (CYSHCN) enrolled in Medicaid managed care. The fact sheet identifies states that leverage Medicaid managed care to advance the pediatric medical home model through payment incentives, technical assistance, and care coordination services.
Starting OCTOBER 13, 2016: In partnership with Family Voices, the Association of Maternal & Child Health Programs is hosting a three-part webinar series to help maternal and child health advocates better prepare for the upcoming open enrollment period. The series, “Maximizing Insurance Enrollment in Maternal and Child Health,” will feature presentations from the Maternal and Child Health Bureau (MCHB), the Center for Consumer Information and Insurance Oversight (CCIIO), Enroll America, state Title V agencies, and health insurance navigators from the family leader community. This 3-webinar series will run on October 13, October 25, and November 9 and feature different topics and speakers.
SEPTEMBER 26, 2016: The Affordable Care Act (ACA) has helped both children with disabilities and their parents. Two reports from the Urban Institute (see Resources) highlight how two generations are benefiting from healthcare coverage under the ACA. Learn more in this blog.
APRIL 13, 2016: Family Voices has been awarded a new three-year cooperative agreement from MCHB as the National Center for Family Professional Partnerships (NCFPP). The new project period will be June 2016 through May 2019. Goals include:
Download the Project Abstract.
Data aggregated from reports submitted by all 51 F2Fs summarizing their work from June 1, 2014 through May 31, 2015 (FY2015) demonstrate their:
- Direct Support to 155,950 families and 74,225 professionals
- Estimated Overall Outreach to 928,225 Families and 350,960 Professionals
- Impacting 92% of families who are better able to partner with providers & navigate systems
This report also includes state by state charts listing F2F partnerships, methods of assistance, involvement in specific initiatives, and additional sources of funding. Read more about the outreach, assistance, training, and impact of F2Fs in this 12-page report.
Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.