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Family Voices Newsletters Sign-up

Enter your email address below to subscribe to any/all of the following:

  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Friday's Child, a quarterly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government

Quick Links

New Blog! What Families Need to Know about the ACA during Tax Season

New Report! 2013-2014 F2F Data Report

New Infusion Tip Sheet! Structured Listening: How Listening Helps Build Respectful Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

2014 Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

April 2, 2015
This webinar will present a discussion about real risks, personal experiences, and ways families of children with genetic conditions or special health care needs can be more prepared.
March 30, 2015
Participate in this national online dialogue through March 30th to help identify what family support researchers should focus on in the next several years.
March 30, 2015
The first webinar in a three part series focusing on implementation and evaluation of pediatric care coordination.
March 26, 2015
A panel presentation of three Family-to-Family Health Information Centers (F2Fs) and Family Voices State Affiliate Organizations (FV SAOs) highlighting examples and lessons learned from their successful partnerships and collaborations on Non-CSHCN initiatives
March 26, 2015
A webinar that will cover ABLE Act core components, as well as the status of implementation at both the federal and state levels
March 26, 2015
A discussion of the significance of personal stories and the role they serve in healing, advocating, and connecting individuals with disabilities
March 25, 2015
A webinar that will provide an overview of the nonprofit best practices model provided by the Standards for Excellence Institute, a project of Maryland Nonprofits
March 25, 2015
A free webinar from the Aligning Forces for Quality (AF4Q) that will highlight the Patient Engagement Toolkit

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HIGHLIGHTS

March 2015 ACA Blog:What Families Need to Know about the ACA during Tax Season

tax.jpgThis is the first year that taxpayers must report on their income tax form if they have health coverage. Some families just have to check a box on their tax return, others need to complete new forms, and still others can ask for a hardship exemption or pay a penalty. Find out what families need to know about how health insurance coverage effects them this tax season in our latest ACA blog issue.


2013 - 2014 F2F Data Report

2013-2014 F2F HIC Data ReportThis 4-page report provides aggregated data on the activities of Family-to-Family Health Information Centers across the country from June 1, 2013 through May 31, 2014.  Data includes families and professionals served, one-to-one assistance, trainings, information dissemination, impact on families, partnership activities, and self-reported impact on policies and programs.

 


Infusion Tip Sheets: Cultural and Linguistic Competence

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.


What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!


Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.