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Enter your email address below to subscribe to Washington DC Update, a free weekly e-digest of timely and relevant policy issues and/or Friday's Child, a bi-monthly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships.

2012-2013_F2FDataReport_01-17-2014-1.jpg2012-2013 F2F Data Report
A one-page report that provides highlights of data reported by F2F HICs in 2012-2013 demonstrating the value and impact in helping families of CSHCN. Data includes counts of families and professionals assisted, kinds of information provided, ratings of partnership activity. Download this report.

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

August 26, 2014
HRSA currently seeking comments on Title V Maternal and Child Health Services Block Grant to States Program: Guidance and Forms for the Title V Application/Annual Report
August 7, 2014
Application for family scholars and mentors to participate in AMCHP’s Family Scholars Program to attend the 2015 AMCHP Annual Conference.
August 6, 2014
Learn about the physical, psychological and social aspects of Sickle Cell Disease as well as treatments and outcomes in this free webinar.
July 28, 2014
Learn more about the exciting and innovative projects from the Combating Autism Act Initiative (CAAI) grantees.
July 25, 2014
Research to identify why access to health care and health outcomes differ among people with different types of disabilities
July 25, 2014
A free webinar by the National Federation of Families for Children's Mental Health to review organizational considerations that are crucial to the successful implementation of three, unique models of Peer Support.
July 24, 2014
A free webinar to hear a federal perspective from CMS on how states can leverage the Medicaid benefit for children and adolescents (also known as EPSDT) to meet the treatment needs of children.
July 22, 2014
A free webinar from the Macy Foundation on efforts to integrate patients and families as partners throughout the health professions education and delivery system

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Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.

ACA: Wellness & Prevention Care

MP900439333-1.jpgIn this month's ACA blog,  Lauren Agoratus (SPAN of NJ) notes that the Affordable Care Act covers many aspects of wellness and prevention at no cost to families. Wellness and preventive care are important to overall health for children with special needs, and the ACA helps parents by covering these services.

Lauren is the parent of a child with multiple disabilities and also serves as the NJ Coordinator for Family Voices and the southern coordinator in her state's Family-to-Family Health Information Center. Please join the conversation. Share your knowledge of family experiences in your state. Share your perspectives and expertise.

2014 Activities & Accomplishments of Family-to-Family Health Information  Centers

2014 F2F HIC Activities & AccomplishmentsThis 68-page report summarizes the critical work accomplished by F2F HICs across the country in helping families of CSHCN during FY2013.  Included in this report are data on CSHCN, F2F HIC outreach, assistance, and training to help families of CSHCN and the professionals who serve them, the impact of such work with families, state by state pages highlighting an F2F activity and story from a family in that state, as well as charts of data indicating F2F partnerships, involvement in specific initiatives, methods of assistance, and funding sources that contribute to the work of each F2F.

Download this report or view it online.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!

2104 Family Voices Family Leadership Meeting: The Power of Partnerships

2014FV-Meeting-139.jpgThis 3-day event in Washington, DC, brought together an energetic group of family leaders from FV State Affiliate Organizations and Family-to-Family Health Information Centers to share their knowledge, experiences, and best practices in helping families of CYSHCN. Family leaders were joined by a stellar cast of national experts to both gain a national perspective and provide the family perspective on children's issues, the disability landscape, upcoming issues in health care, emerging issues and more!  Learn more about the meeting, the Family Voices legislative reception, download materials, and check out the photo gallery on the Family Voices website.