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  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Friday's Child, a quarterly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government

Quick Links

New Blog! Barriers for Individuals with Disabilities in Getting Access to Healthcare

2013-2014 F2F Data Report

Structured Listening: How Listening Helps Build Respectful Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

2014 Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

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November 19, 2015
Sponsored by Region VIII Federal Partners
November 19, 2015
Hosted by the National Center for Family/Professional Partnerships
November 19, 2015
Presented by the Center on Budget and Policy Priorities, the National Immigration Law Center (NILC), and the Georgetown University Center for Children and Families (CCF)
November 18, 2015
Sponsored by the National Consumer Voice for Quality Long-Term Care and the National Center on Elder Abuse
November 17, 2015
Sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) Tribal Training and Technical Assistance (TTA) Center, Generational Resilience Learning Community
November 12, 2015
Sponsored by AAP and CDC
November 10, 2015
Findings from a family support survey and discussion of future directions for research
November 5, 2015
A webinar on surprise medical bills and accessing accurate provider directories sponsored by Families USA
November 5, 2015
How text messaging improved outcomes and increased patient engagement at a comprehensive behavioral health facility
November 5, 2015
Overview of legal considerations related to health data, background on American Indian and Alaska Native public health data and surveillance issues, and discuss the role of law in the access to this data
November 4, 2015
What these health centers need to know to be compliant with IRS, federal, and state regulations when conducting advocacy and civic engagement work
November 1, 2015
A Federal Partners in Transition Webinar

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Experiences and Attitudes of Primary Care Practitioners After the ACA How Has the ACA Changed Primary Care?

About 6 of 10 primary care clinicians say they’re seeing more newly insured patients or patients covered by Medicaid since the ACA’s major coverage provisions took effect in January 2014. Large shares—66% of nurse practitioners and physician assistants and 50% of physicians—report that they’re currently accepting new Medicaid patients.


ABCs of Quality Improvement2016 ABCs of Quality Improvement Course - Now Accepting Applications!

This is the third and final opportunity, through NCFPP’s cooperative agreement, to participate in a web-based course to learn concepts and best practices of Quality Improvement.  The course consists of a series of 5 webinars, taught by a faculty member from the National Institute for Children’s Health Quality (NICHQ), and regularly scheduled coaching calls.  During the course, each participating team applies their learning to a real-life quality improvement project of their choice and receives support from an assigned family faculty mentor.  Applications are due December 11, 2015. Learn more here.

2015_Rodriguez.jpgNEW ACA BLOG: Barriers for Individuals with Disabilities in Getting Access to Healthcare

Even after children and adults with special needs have enrolled in a healthcare plan through a State or the Federal Marketplace, some are having difficulties accessing care. In this blog, we summarize some of the obstacles and how they can be addressed.

Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.

Elements of Family-Centered CareNew Journal Article on the Family-Centered Care Assessment Tool

The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal.  This study describes the process that  yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.

Learn more about the FCCA, including requesting access to use the tool here.

Infusion Tip Sheets: Cultural and Linguistic Competence

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!