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Family Voices Newsletters Sign-up

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  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Friday's Child, a quarterly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government

Quick Links

New Blog! Why Health Care Costs May Rise Again: What Families Need to Know

2013-2014 F2F Data Report

Structured Listening: How Listening Helps Build Respectful Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

2014 Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

September 25, 2015
Confronting and Addressing the “Isms”
September 17, 2015
Learn more about evidence-based maternal, infant, and early childhood home visiting—and how it can improve birth outcomes and impact infant mortality.
September 17, 2015
Sustaining the Momentum: Incorporating Genetics in the Management of Children in the Primary Care Office
September 15, 2015
Patient and family engagement is associated with fewer adverse events, lower health care costs, decreased use of services, better patient self-management, and higher patient-satisfaction scores. On this webinar, results from a research survey will be discussed and two hospitals that excel in patient-and-family-engagement practices will be highlighted.
September 11, 2015
Engaging and Partnering with Culturally and Linguistically Diverse Communities
September 9, 2015
Although the original focus of the NMEP meeting was to enlist national and local organizations to support outreach and education around the Medicare program, the focus of these meetings has been expanded to reflect additional CMS programs such as the Health Insurance Marketplace, Medicaid and the Children’s Health Insurance Program.
August 14, 2015
Addressing Disparities and Disproportionality in Systems serving Individuals with Intellectual and Developmental Disabilities
July 30, 2015
Influencing Change in Public and Organizational Policy in Support of Cultural Diversity and Cultural and Linguistic Competence
July 23, 2015
Sponsored by Healthy People 2020
July 21, 2015
Sponsored by the CMS Connecting Kids to Coverage Campaign
July 20, 2015
Sponsored by the Catalyst Center and the National Center for Medical Home Implementation
July 16, 2015
Obtaining and Documenting a Pediatric Family History

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Medical Symbol with a dollar sign and dollar billsNEW ACA BLOG: Why Health Care Costs May Rise Again: What Families Need to Know

Health care premiums increases have lessened in recent years but costs may again rise. Find out why this could happen and what families can do to prepare.

Visit this blog written by Lauren Agoratus of SPAN of New Jersey.

NEW TOOL: Well Visit Planner

The American Academy of Pediatrics recommends 13 well child visits the first 3 yeras of life.  www.WellVisitPlanner.orgThe Well Visit Planner is an online tool to help families prepare for their children’s upcoming well-child visits to the health care provider. It’s free to use; is available in English and Spanish; takes 10-15 minutes to fill out before each visit; and can be printed and taken to a visit to help your and your child’s doctor discuss your child. It helps families be better partners in their child’s health care, and helps health care providers better serve the needs of the child and the family.

Attend a free webinar to learn more about this tool.

Visit the Family Voices IMPACT website to learn more about this tool.

Elements of Family-Centered CareNew Journal Article on the Family-Centered Care Assessment Tool

The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal.  This study describes the process that  yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.

Learn more about the FCCA, including requesting access to use the tool here.

Infusion Tip Sheets: Cultural and Linguistic Competence

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!

Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.