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2012-2013_F2FDataReport_01-17-2014-1.jpg2012-2013 F2F Data Report
A one-page report that provides highlights of data reported by F2F HICs in 2012-2013 demonstrating the value and impact in helping families of CSHCN. Data includes counts of families and professionals assisted, kinds of information provided, ratings of partnership activity. Download this report.

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

Quick Links

New! NCFPP Partners with the National Disability Navigator Resource Collaborative to help disseminate resources to help navigators and other assisters help people with disabilities access the marketplace.

New! ACA & CSHCN blog post:  How Immigrant Status Affects Eligibility for Health Plans in the Marketplace

New! Request to Use Family-Centered Care Assessment

ACA Resource Center

2012-2013 F2F Data Report

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

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News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

April 24, 2014
Webinar to learn more about Family Advisory Groups and their benefits to pediatric practices. Implementation strategies will be discussed.
April 17, 2014
Comments are now being sought regarding revisions in the criteria in the Listing of Impairments (listings) that Social Security Act (SSA) uses to evaluate disability claims involving neurological disorders in adults and children.
April 8, 2014
The Genetic Alliance is working with the Food and Drug Administration (FDA) to learn more about sickle cell disease. Individuals affected by sickle cell are asked to complete a survey around symptom severity and current unmet medical needs.
April 3, 2014
Connecting Kids to Coverage National Campaign is hosting this webinar to raise awareness that individuals who are eligible for Medicaid and CHIP can enroll at any time.
April 2, 2014
Webinar sponsored by National Academy for State Health Policy/State Refor(u)m with state officials from Colorado, Montana, and New Mexico, who will share their distinct approaches to coordinating care for rural residents.
March 27, 2014
Webinar to learn more about how partnership support in a pediatric practice can improve care.

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What can Families do now that Enrollment is over but Circumstances Changed?


This month's blog by Lauren Agoratus provides information to help families understand that there are circumstances when families need to interact with the marketplace, such as life changes or loss of employer medical insurance. Lauren also remind us that enrollment in CHIP and Medicaid can occur anytime.

Lauren is the parent of a child with multiple disabilities and also serves as the NJ Coordinator for Family Voices and the southern coordinator in her state's Family-to-Family Health Information Center. Please join the conversation. Share your knowledge of family experiences in your state. Share your perspectives and expertise.

Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!

Man with a prosthetic leg at the top of a mountainAre You an ACA Navigator or Someone Helping Individuals Access the marketplace?

Learn more about how you can strengthen disability literacy; identify and provide appropriate accommodations and support; and correctly identify issues that are central to healthcare insurance eligibility.  Visit the National Disability Navigator Resource Collaborative (NDNRC) and learn more about the partnership with the NCFPP.


Young boy sitting on his mother's lapThe Centers for Disease Control and Prevention (CDC) studies show that CYSHCN with neurological conditions, including intellectual disabilities, are at high-risk for flu complications, such as hospitalizations and even death.  Additional studies also show that families rely on their child's provider for information about the flu, yet many pediatricians are unaware of the risk to CYSHCN with intellectual disabilities.  This webinar, hosted by Family Voices NCFPP and CDC discussed these results and the implications for families.  As a result of these findings, families and providers are urged to spread the word that flu prevention is a priority for CYSCHN with neurological conditions.