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This month's blog by Lauren Agoratus provides information to help families understand that there are circumstances when families need to interact with the marketplace, such as life changes or loss of employer medical insurance. Lauren also remind us that enrollment in CHIP and Medicaid can occur anytime.
Lauren is the parent of a child with multiple disabilities and also serves as the NJ Coordinator for Family Voices and the southern coordinator in her state's Family-to-Family Health Information Center. Please join the conversation. Share your knowledge of family experiences in your state. Share your perspectives and expertise.
Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.
What's happening with the healthcare exchange in your state? What's a navigator? Will your state expand Medicaid? Looking to learn more about the ACA? Visit our resource page and sign up for our weekly news brief, Washington Update!
Learn more about how you can strengthen disability literacy; identify and provide appropriate accommodations and support; and correctly identify issues that are central to healthcare insurance eligibility. Visit the National Disability Navigator Resource Collaborative (NDNRC) and learn more about the partnership with the NCFPP.
The Centers for Disease Control and Prevention (CDC) studies show that CYSHCN with neurological conditions, including intellectual disabilities, are at high-risk for flu complications, such as hospitalizations and even death. Additional studies also show that families rely on their child's provider for information about the flu, yet many pediatricians are unaware of the risk to CYSHCN with intellectual disabilities. This webinar, hosted by Family Voices NCFPP and CDC discussed these results and the implications for families. As a result of these findings, families and providers are urged to spread the word that flu prevention is a priority for CYSCHN with neurological conditions.