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Family Voices Newsletters Sign-up

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  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Friday's Child, a quarterly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government

Quick Links

New Blog! Health Disparities, People with Disabilities, and How the ACA can Help

New Report! 2013-2014 F2F Data Report

New Infusion Tip Sheet! Structured Listening: How Listening Helps Build Respectful Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

2014 Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

July 8, 2015
Sponsored by the National Academy for State Health Policy
July 1, 2015
Changes to care coordination as states move to expand Medicaid managed care,
June 30, 2015
Sponsored by the Disability and Aging Collaborative, this webinar will present findings from three recent studies on family caregiving.
June 29, 2015
CHIP
June 25, 2015
Quality
June 22, 2015
Program Integrity
June 19, 2015
TRICARE and Military OneSource are co-hosting a webinar to educate TRICARE beneficiaries about their options for getting prescription medications.
June 18, 2015
Actuarial soundness, Rate setting, Rate certification, Medical Loss Ratio, Short-term IMD stay, Delivery System Reform
June 18, 2015
Supreme Court Case on the Affordable Care Act
June 18, 2015
Sponsored by the Substance Abuse and Mental Health Services Administration

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HIGHLIGHTS

Family-to-Family Health Information Centers Funded through FY 2017

a logo showing family-to-family health information centersThe Health Resources and Services Administration (HRSA) recently announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers (F2Fs) in every state and the District of Columbia. This is great news for families of children and youth with special health care needs, who seek assistance and training from such centers in navigating services, identifying and applying for financing programs, and partnering in decision-making with their child's providers. In FY 2014 F2Fs provided information, assistance, and training to approximately 1.1 million families and 400 thousand professionals.

Family Voices National Center for Family/Professional Partnerships supports the network of F2Fs and other family leaders in increasing the capacity of families, Title V, and others to partner in implementing ACA; strengthening the primary care workforce through family/professional learning opportunities; and improving access to quality care through innovation in family-centered care, cultural & linguistic competence, and shared decision-making.


NEW TOOL: Well Visit Planner

The American Academy of Pediatrics recommends 13 well child visits the first 3 yeras of life.  www.WellVisitPlanner.orgThe Well Visit Planner is an online tool to help families prepare for their children’s upcoming well-child visits to the health care provider. It’s free to use; is available in English and Spanish; takes 10-15 minutes to fill out before each visit; and can be printed and taken to a visit to help your and your child’s doctor discuss your child. It helps families be better partners in their child’s health care, and helps health care providers better serve the needs of the child and the family.

Attend a free webinar to learn more about this tool.

Visit the Family Voices IMPACT website to learn more about this tool.


Funding Opportunity Announced for Navigators in Federally-Facilitated Marketplaces 

sign postThe Centers for Medicare & Medicaid Services (CMS) has announced the availability of funding to support Navigators in federally-facilitated Marketplaces (FFM), including State Partnership Marketplaces. Grantees will be selected for a three year project period, and a total of up to $67 million is available for the first year of the award. The funding opportunity announcement is open to eligible individuals, as well as private and public entities, applying to serve as Navigators in states with a FFM. It is open to new and returning HHS Navigator grant applicants, and applications are due by June 15, 2015.


Elements of Family-Centered CareNew Journal Article on the Family-Centered Care Assessment Tool

The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal.  This study describes the process that  yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.

Learn more about the FCCA, including requesting access to use the tool here.


2013 - 2014 F2F Data Report

2013-2014 F2F HIC Data ReportThis 4-page report provides aggregated data on the activities of Family-to-Family Health Information Centers across the country from June 1, 2013 through May 31, 2014.  Data includes families and professionals served, one-to-one assistance, trainings, information dissemination, impact on families, partnership activities, and self-reported impact on policies and programs.

 


Infusion Tip Sheets: Cultural and Linguistic Competence

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.


What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!


Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.