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Family Voices Newsletters Sign-up

Enter your email address below to subscribe to any/all of the following:

  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Friday's Child, a quarterly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government

Quick Links

New Blog! Health Disparities, People with Disabilities, and How the ACA can Help

New Report! 2013-2014 F2F Data Report

New Infusion Tip Sheet! Structured Listening: How Listening Helps Build Respectful Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

2014 Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

June 18, 2015
"How can individuals with disabilities be more involved in the decisions about settings that enhance engagement in community life? How would supported decision-making help to make decisions about setting options that are based on individual needs and preferences?"
June 10, 2015
Aspirations Versus Reality and How States Can Bridge the Gap
June 4, 2015
The webinar will address the definition of trauma, the incidence and effect of trauma, understanding triggers and perception of behaviors, healing from trauma, service planning, and creating environments that do not re-traumatize individuals.
May 28, 2015
A listening session to hear about consumer experiences and problems from those who have helped consumers enroll in health care plans
May 28, 2015
This is the last webinar in a three-part series hosted by the National Center for Medical Home Implementation of the American Academy of Pediatrics and will expand on information, tools, and resources.
May 28, 2015
This webinar will examine the experience of the Navajo tribe in the Southwest to demonstrate how the history of colonization in North America has had lasting genetic effects on the Navajo.
May 26, 2015
This webinar will address the potential of using digital health technologies to care for vulnerable or complex patients.
May 21, 2015
A discussion of the role of schools, colleges and universities in this webinar.
May 21, 2015
Surging and Merging to Optimize the Coverage Continuum
May 19, 2015
This Web Forum will examine some of the ways a wider look at the issues that impact AAPI health can prove to have important long term benefits as we strive for a healthier status.

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May 2015 ACA Blog: Health Disparities, People with Disabilities, and How the ACA can Help

Dad with young daughter on his shouldersThe term “health disparities” means that there are differences in health outcomes for various populations, such as by race, ethnicity, gender, or socio-economic status.  Children and adults with disabilities, especially those from underserved communities, may have worse health results than others.  Some of these unfavorable outcomes could be prevented.  This piece examines how to improve outcomes for diverse individuals with disabilities and how the ACA (Affordable Care Act) can facilitate this. Read the blog here.

Funding Opportunity Announced for Navigators in Federally-Facilitated Marketplaces 

sign postThe Centers for Medicare & Medicaid Services (CMS) has announced the availability of funding to support Navigators in federally-facilitated Marketplaces (FFM), including State Partnership Marketplaces. Grantees will be selected for a three year project period, and a total of up to $67 million is available for the first year of the award. The funding opportunity announcement is open to eligible individuals, as well as private and public entities, applying to serve as Navigators in states with a FFM. It is open to new and returning HHS Navigator grant applicants, and applications are due by June 15, 2015.

Child Health USA 2014

Child Health USA 2014This new report from HHS/Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau includes the latest data on the health status and service needs of America’s infants, children, and adolescents.  Key Findings from childhood population characteristics are:

  • More than 16.5 million (22.3 percent) children lived in households with incomes below the U.S. Census Bureau’s poverty threshold ($23,834 for a family of 4 in 2013).
  • Racial and ethnic diversity continued to increase, particularly for Hispanic children who represented more than 24 percent of all children in 2013 (up from 8.8 percent in 1980).
  • In 2011–2012, 19.8 percent of U.S. children under 18 years of age had a special health care need as defined by having a chronic medical, behavioral, or developmental condition lasting 12 months or longer and experiencing a service-related or functional consequence.

Elements of Family-Centered CareNew Journal Article on the Family-Centered Care Assessment Tool

The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal.  This study describes the process that  yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.

Learn more about the FCCA, including requesting access to use the tool here.

2013 - 2014 F2F Data Report

2013-2014 F2F HIC Data ReportThis 4-page report provides aggregated data on the activities of Family-to-Family Health Information Centers across the country from June 1, 2013 through May 31, 2014.  Data includes families and professionals served, one-to-one assistance, trainings, information dissemination, impact on families, partnership activities, and self-reported impact on policies and programs.


Infusion Tip Sheets: Cultural and Linguistic Competence

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!

Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.