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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U40MC00149. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government
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The article, Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool, has recently been published online in the Maternal and Child Health Journal. This study describes the process that yielded a robust and psychometrically sound instrument for which there has been substantial interest from health care providers, researchers, and family groups. The FCCA provides an important alternative to existing measures of families’ experiences of health care, including the CAHPS, which does not address the full range of topical areas deemed important to families, and the MHFI, which lacks the rigorous psychometric evaluation of the FCCA. The findings from this study also provide compelling evidence of the value of families taking substantive roles as researchers in the development of quality measures. The high level of validity of the family-created questions in this study indicates how consistent the concepts in the developed questions are with the expectations of families across all demographic groups. This model of partnership in research, with consumers themselves in the lead, provides an important model for future quality measure development.
Learn more about the FCCA, including requesting access to use the tool here.
Most Americans do not realize that their health care is subsidized. This lack of understanding has led to a basic misperception on how various health care plans are funded and unnecessary stigma associated with some plans. This blog describes how, through employer-subsidized plans, the marketplace plans, and public programs, almost everyone in the US gets help to pay for health care. Read the blog here.
This 4-page report provides aggregated data on the activities of Family-to-Family Health Information Centers across the country from June 1, 2013 through May 31, 2014. Data includes families and professionals served, one-to-one assistance, trainings, information dissemination, impact on families, partnership activities, and self-reported impact on policies and programs.
Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families. In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.
What's happening with the healthcare exchange in your state? What's a navigator? Will your state expand Medicaid? Looking to learn more about the ACA? Visit our resource page and sign up for our weekly news brief, Washington Update!
Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.