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Family Voices Newsletters Sign-up

Enter your email address below to subscribe to Washington DC Update, a free weekly e-digest of timely and relevant policy issues and/or Friday's Child, a bi-monthly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships.

2012-2013_F2FDataReport_01-17-2014-1.jpg2012-2013 F2F Data Report
A one-page report that provides highlights of data reported by F2F HICs in 2012-2013 demonstrating the value and impact in helping families of CSHCN. Data includes counts of families and professionals assisted, kinds of information provided, ratings of partnership activity. Download this report.

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

Quick Links

New! Blog & Tip Sheet: How Can Families and Professionals Help Children with Special Needs Keep Insurance Coverage as they Age Out?

New!Infusion Tip Sheet: Building Cross-Cultural Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

2012-2013 F2F Data Report

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

November 15, 2014
Information to help consumers in the second ever ACA Open Enrollment - from November 15 to December 15.
October 29, 2014
A free webinar that will discuss the history of feeding tubes, their benefits for children with a range of medical conditions, and the pros and cons of different types of feeding tubes.
October 28, 2014
A free webinar sponsored by HHS/Administration for Children & Families (ACF), Office of Community Services and the Family Violence Prevention and Services Program (FVPSA)
October 23, 2014
A free webinar that will provide an update on how three Family-to-Family Health Information Centers are helping families and professionals understand and navigate the ACA.
October 23, 2014
A free webinar sponsored by HHS/NPA, the National Network of Public Health Institutes (NNPHI), and the Association for State and Territorial Health Officials (ASTHO)
October 21, 2014
A free webinar sponsored by HHS/National Partnership for Action to End Health Disparities (NPA) and the Heartland Regional Health Equity Council (Heartland RHEC)
October 15, 2014
Consider sharing your experiences with your child receiving telehealth services.
October 8, 2014
A free webinar that will discuss telehealth, how it can be used to improve care for children with special health care needs, and how advocates can help promote its wider adoption.

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Infusion Tip Sheet: Building Cross-Cultural Relationships

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.

Gearing Up for Open Enrollment

Learn more about the second ever ACA Open Enrollment which takes place from November 15 through February 15.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!

2014 Activities & Accomplishments of Family-to-Family Health Information  Centers

2014 F2F HIC Activities & AccomplishmentsThis 68-page report summarizes the critical work accomplished by F2F HICs across the country in helping families of CSHCN during FY2013.  Included in this report are data on CSHCN, F2F HIC outreach, assistance, and training to help families of CSHCN and the professionals who serve them, the impact of such work with families, state by state pages highlighting an F2F activity and story from a family in that state, as well as charts of data indicating F2F partnerships, involvement in specific initiatives, methods of assistance, and funding sources that contribute to the work of each F2F.

Download this report or view it online.

Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.

2104 Family Voices Family Leadership Meeting: The Power of Partnerships

2014FV-Meeting-139.jpgThis 3-day event in Washington, DC, brought together an energetic group of family leaders from FV State Affiliate Organizations and Family-to-Family Health Information Centers to share their knowledge, experiences, and best practices in helping families of CYSHCN. Family leaders were joined by a stellar cast of national experts to both gain a national perspective and provide the family perspective on children's issues, the disability landscape, upcoming issues in health care, emerging issues and more!  Learn more about the meeting, the Family Voices legislative reception, download materials, and check out the photo gallery on the Family Voices website.