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Family Voices Newsletters Sign-up

Enter your email address below to subscribe to any/all of the following:

  • Washington DC Update, a weekly e-digest of timely and relevant policy issues
  • Friday's Child, a quarterly e-newsletter of news & resources on such topics as leadership, mentoring, and partnerships
  • Resource Email Blasts, a monthly links digest of new resources for families of CYSHCN
  • Bright Futures Family Matters, a newsletter for families and professionals about news, information, and activities in the maternal and child health community

2012-2013_F2FDataReport_01-17-2014-1.jpg2012-2013 F2F Data Report
A one-page report that provides highlights of data reported by F2F HICs in 2012-2013 demonstrating the value and impact in helping families of CSHCN. Data includes counts of families and professionals assisted, kinds of information provided, ratings of partnership activity. Download this report.

Partnering Materials_Jan2014.jpgPartnering Materials
We have updated these popular publications. Partnering with Your Child's Provider provides tips for caregivers on preparing for appointments, meeting with their child's doctor, and follow-up activity. Partnering with Your Child's Health Plan provides tips to help family member meet with their child's health plan to discuss plan policies for CYSHCN and how partnering with families can make a difference. A family story is highlighted.

Learn More about Family-to-Family Health Information Centers

Watch a video about Family-to-Family Health Information Centers

Quick Links

New! Blog & Tip Sheet: Open Enrollment is Coming: How Families can Enroll, Keep, or Change their Marketplace Plan

New! Infusion Tip Sheet: Building Cross-Cultural Relationships

The Power of Partnerships: Materials, Photos, and more from the 2014 Family Voices Leadership Meeting

2014 Report on the Activities & Accomplishments of Family-to-Family Health Information Centers

ACA Tip Sheets

Request to Use Family-Centered Care Assessment

ACA Resource Center

2012-2013 F2F Data Report

Friday's Child

Family-to-Family Health Information Center Brochure

NCFPP Brochure

News & Happenings

Tell us about an upcoming event you would like to have posted in this column.

December 4, 2014
HHS/Food and Drug Administration (FDA), in partnership with OMH: Request for comments on the Patient Participation in Medical Product Discussions. FDA seeks to gather input from stakeholders on strategies to obtain the views of patients during the medical product development process and ways to consider patients' perspectives during regulatory discussions. Deadline is December 4, 2015.
December 4, 2014
This free webinar will be hosted by NICHQ (National Institute for Children’s Health Quality) and will complement the release of the “Sickle Cell Disease Treatment Demonstration Program Congressional Report” submitted to Congress on Oct. 24. The webinar will provide an overview and open discussion of the results and recommendations in the report.
November 21, 2014
This webinar is designed for professionals who are interested in learning more about culturally specific and relevant strategies working with Hmong families with young children. Cultural views of disability and child development will be discussed. Resources and materials from "Learn the Signs. Act Early." will be highlighted
November 20, 2014
This free webinar, by the National Disability Navigator Resource Collaborative will help assisters think about what questions a person with a disability needs to think about when they are considering their health care options in the ACA Marketplace
November 17, 2014
Join @PCORI for a Live Twitter Q&A on patient engagement in research where Sue Sheridan, PCORI’s Director of Patient Engagement, will be taking your questions.
November 15, 2014
Revisions to the survey for evaluating patient experiences in practices that serve as medical homes have been proposed and comments are now being sought.
November 15, 2014
Information to help consumers in the second ever ACA Open Enrollment - from November 15 to December 15.
November 12, 2014
A webinar hosted by US Department of Health and Human Services to provideiInformation on the role that faith, health and community leaders can play in addressing concerns about the spread of Ebola

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New Opportunity: ABCs of Quality Improvement, A Webinar Course

ABCs of Quality ImprovementThe National Center for Family Professional Partnerships (NCFPP) and National Institute for Children's Health Quality (NICHQ) are pleased to offer this 6-session webinar course as an opportunity for teams of 2-6 participants to learn an effective quality improvement process and apply it to a real-life project to improve a system, service or support for CYSHCN. The course will take place February through May 2015. Learn more.

New Family-to Family Health Information Center Funding Announced!

f2f hic logoFunding for Family-to-Family Health Information Centers for the period June 1, 2015 through May 31, 2018 has been announced.  Up to $95,700 is available per year to fund a center in each state and the District of Columbia.  Read the guidance, view the TA webinar recording, and find more information.

Open Enrollment is Coming!

From November 15, 2014 through February 15, 2015, families will have the opportunity to enroll in health care plans, renew their plan, or change to a new plan in the Marketplace. Our latest blog entry provides information and resources to help families through this process.

Infusion Tip Sheet: Building Cross-Cultural Relationships

Infusion: Diversity & Cultural Competence

Family Voices strives to infuse cultural and linguistic competence throughout the organization to meet the needs of all families.  In this tip sheet, we provide strategies to help build cross-cultural relationships and help you consider the "individual vs. community" approach.

What Families Need to Know about
the Affordable Care Act (ACA)

Affordable Care Act ResourcesWhat's happening with the healthcare exchange in your state?  What's a navigator?  Will your state expand Medicaid?  Looking to learn more about the ACA?  Visit our resource page and sign up for our weekly news brief, Washington Update!

2014 Activities & Accomplishments of Family-to-Family Health Information  Centers

2014 F2F HIC Activities & AccomplishmentsThis 68-page report summarizes the critical work accomplished by F2F HICs across the country in helping families of CSHCN during FY2013.  Included in this report are data on CSHCN, F2F HIC outreach, assistance, and training to help families of CSHCN and the professionals who serve them, the impact of such work with families, state by state pages highlighting an F2F activity and story from a family in that state, as well as charts of data indicating F2F partnerships, involvement in specific initiatives, methods of assistance, and funding sources that contribute to the work of each F2F.

Download this report or view it online.

Family-Centered Care Assessment

Mother with baby at the doctor's office

Did you know that family-centered care can improve patient and family outcomes, increase satisfaction, decrease health care costs, and lead to more effective use of health care resources? You can learn more about what makes health care family-centered by using the Family Voices Family-Centered Care Assessment tool, a 24-question tool to measure family centeredness of provider care based on ideas created by families themselves.

2104 Family Voices Family Leadership Meeting: The Power of Partnerships

2014FV-Meeting-139.jpgThis 3-day event in Washington, DC, brought together an energetic group of family leaders from FV State Affiliate Organizations and Family-to-Family Health Information Centers to share their knowledge, experiences, and best practices in helping families of CYSHCN. Family leaders were joined by a stellar cast of national experts to both gain a national perspective and provide the family perspective on children's issues, the disability landscape, upcoming issues in health care, emerging issues and more!  Learn more about the meeting, the Family Voices legislative reception, download materials, and check out the photo gallery on the Family Voices website.