Advocacy ATLAS Tool

Advocacy ATLAS toolkitWhat is the Advocacy ATLAS?

The online Advocacy ATLAS is a toolkit created by Genetic Alliance, Parent to Parent USA, and Family Voices that provides individuals with special healthcare needs and their families with tools and strategies to advocate for whatever they may need.

How Do I Use It?

The toolkit is available at http://www.geneticalliance.org/advocacy-atlas. Resources are grouped by category on the Advocacy ATLAS landing page. Simply click one of the ten topic areas to get started browsing accessible tools!

How was the ATLAS Developed?

Genetic Alliance, Parent to Parent USA, and Family Voices partnered to develop this tool.  Through our State Affiliate Organizations (SAO) and network of Family-to-Family Health Information Centers (F2F HICs), Family Voices outreached to families of children/youth with special health care needs for resources, stories and photos.

The development team, made up of leaders from Genetic Alliance, Parent to Parent USA, and Family Voices collected tools and resources from their vast combined networks of parents, parent advocacy groups, disease-specific advocacy groups, disability groups, and other partners. This team developed criteria for inclusion, resource categories, and an easy to use format for the toolkit. Individuals with special healthcare needs and their families were an integral part of design: providing guidance and feedback during each step of development to ensure the toolkit is useful and easy to use. Families shared personal stories about advocacy to be included on the site. Thank you very much to everyone who has contributed to the site! 

Learn More

Learn more about the Advocacy ATLAS and listen to stories from self and parent advocates about their experiences with advocacy: