Information and Resources for Families about the Zika Virus

Zika Family Resources
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There is an overwhelming amount of information on the Zika virus in the media, but where can families find basic information that they can share with other families to help them take steps to protect themselves and their unborn children?

This list of resources, compiled by Family Voices, provides links to valuable information for families about the Zika virus. Stay up-to-date on Zika by following the hashtag #Zika on twitter.


New:  Zika Care Connect

Zika Care Connect is dedicated to improving access to clinical services for families affected by Zika in 10 specific areas throughout the United States and its territories that are at high risk for Zika: California, Florida, Georgia, Maryland, New Jersey, New York, Texas, Virginia, Puerto Rico, and the US Virgin Islands. With the ultimate goal of lessening the effects of Zika on children and families, this important resource is now available to help pregnant women and families find the medical help they need. Zika Care Connect plans to expand to 5-10 additional jurisdictions in the near future.

What’s on the Zika Care Connect website?

The Zika Care Connect website contains information to help pregnant women and families find the appropriate healthcare professional and resources that can address their specific needs.

  • Healthcare Professional Network – a searchable database of healthcare specialists who provide care for pregnant women and infants affected by Zika
    • Healthcare specialties include maternal-fetal medicine, mental health, audiology, radiology, pediatric ophthalmology, pediatric neurology, developmental pediatrics, infectious disease, and endocrinology
  • HelpLine – a call line staffed from 9 a.m. to 5 p.m. ET by professionals who can help answer questions and provide referrals to healthcare professionals in the Zika Care Connect network
  • Downloadable Materials for Patients, Families, and Healthcare Professionals – fact sheets, charts, checklists and other documents about Zika
  • Frequently Asked Questions – answers to common questions about Zika and Zika Care Connect

General Information


 Information for Families


 Prevention


 Information for Pregnant Women


 Transmission of Zika Virus

 

This resource is funded wholly or in part by the Centers for Disease Control and Prevention (CDC) under Grant Agreement 5U38OT000140-03 to the Association of University Centers on Disabilities (AUCD).

Zika Webinar Archive:

ZIKA: What Family Leaders Working in Public Health Should Know.  This Family Voices/NCFPP webinar, originally presented in September 2016, shared a panel presentation on supportive and preventive measures available for families dealing with a diagnosis of Zika; what family leaders need to know to better serve families faced with the diagnosis; and updates from CDC.

Presenters:

  • Dr. Georgina Peacock, MD, MPH, FAAP, National Center on Birth Defects and Developmental Disabilities
  • Dr. Fernando Ysern, MD, FAAP, Puerto Rico American Academy of Pediatrics
  • Ms. Coralaidee Jimenez, Family Representative, Puerto Rico

Listen to the presentation recording

Download the slides