ALF2FHIC is a resource for families and professionals for information, training, guidance, and support. Leveraging staff expertise and key partnerships, we will continue to mentor families, develop additional resources, and expand our reach to identify and assist traditionally underserved populations. The purpose of ALF2FHIC is to promote family-centered care and the integration of culturally competent values, practices, and policies to support true family-professional partnerships at all levels of the health service system.
Partners in Care Summit
The Partners in Care Summit (PIC) is a two day conference designed to bring together families of CSHCN, youth, and professionals serving CSHCN. The first day is reserved for families and youth, and focuses on leadership development as well as practical information requested by families. There is time for networking and resource sharing. The second day is attended by families, youth and professionals, all learning together. Session topics have included family engagement, medical home development, and transition to adult life for CSHCN, with an emphasis on health care transitions. There have also been sessions on timely topics of interest, such as the Affordable Care Act and changes to the Medicaid program in Alabama. For the past two years, our F2F has partnered with Children’s Rehabilitation Service (state CSHCN Program) and their D70 project (State Implementation Grants for Systems of Services for CSHCN). The additional funding that these partners have provided has allowed the F2F to support more families to participate in the Summit, and to bring in more national speakers. Attendance has grown from 100 in the first years to 150 years in the last two years.
FEEDBACK: Professionals and families have consistently given the summit outstanding evaluations. The evaluation asks if participants felt they have learned new skills or strategies that will help them promote better partnerships between families and professionals to make good health care decisions. 93% report that they agree or strongly agree that they did learn at least one new skill or strategy. Also, of those participants who indicated an increase in knowledge and ability/skills, almost all indicated a 1-level increase, a statistically significantly finding.