The families of children and youth with special health care needs (CYSHCN) in California face extraordinary challenges in accessing health care. Through a highly collaborative structure and method, FVCA F2FHIC is posed to address the goals of this project: 1) Families of CYSHCN throughout California will have access to family-centered, community-based, culturally competent health care; and 2) California will have improved policies and systems of heath care for children and youth with special health care needs.
Activities/Methodology:FVCA F2FHIC is a collaborative of eight Council Member Agencies (CMAs) and a FVCA Manager. Our method includes: providing up-to-date individualized and culturally competent information, education and support to families and professionals; and improving policies and systems of care for CYSHCN by promoting and supporting collaboration and participating in policy development and implementation. With knowledge and support, families will be able to build more effective partnerships with professionals, make their voices heard to improve policies and systems of health care in California, moving California closer to the fulfillment of MCHB core outcomes.
Project Leadership and Health Summit
FVCA works to increase the number of family members with CSHCN who are prepared and supported to become advocates for health care policy and systems improvements through its Project Leadership training. Recent graduates of this program participated in the 2014 FVCA Health Summit. This Summit provided information and education to 133 participants (64 parents or adult family members, 11 youth and 58 professionals) about key components, benefits and concerns related to the California Children’s Services (CCS) Title V program; how to access behavioral services through schools; Medi-Cal and private insurance; oversight and monitoring of Medi-Cal Managed Care after the transition of Healthy Families to Medi-Cal. 98% of Summit participants agreed or strongly agreed that they learned new information about policy issues that affect families of CSHCN.