CONNECTICUT

P.O. Box 117 
Northford, CT 06472-0117
Phone:  (203) 234-9554Fax:  (203) 234-1876Toll-Free:  (800) 399-7284
Primary Contact(s):
Grant Abstract Summary:
*This project will focus on training to increase understanding and utilization of appropriate health resources. *Will provide one to one assistance in navigating health care services using a parent to parent model. *As a result families will develope skills to navigate the complex maze of health care supports and services and will understand health financing, eligibilty of CT public and private insurance program.

Activities/Methodology:A)Increase understanding and utilization of appropriate health resources for CYSHCN and their families in Connecticut by offering community based training and one to one sessions for families of CYSHCN. B) Expand the mechanism and means through which families are receiving health resources and information by: Disseminating information on health resources and ACA health reform fact sheets C)Build the leadership of families of CYSHCN and their capacity to improve health policies and practices in CT. The project will recruit and train 30 emerging parent leaders from a grassroots level. These parent leaders will be natured and mentored and encouraged to participate in local and statewide system changing initiatives. Parents will be compensated a small stipend to attend trainings and skill building workshops. It is a fact that when parents are provided with training and supported, nurtured and mentored, they reciprocate and use their talents and expertise to help others. Parent Leaders will be provided with opportunities to connect and network with newly referred parents.
Highlighted Activity:
State Implementation Grant for Autism & other Developmental Disabilities
PATH/Family Voices of CT (FVCT) works with multiple partners in a Collaborative to Improve Autism Services with a goal of enhancing Connecticut’s existing infrastructure supporting children and youth with autism spectrum disorder (ASD) and other developmental disabilities. Project activities include providing one-to-one parent-to-parent support and training to families/caregivers of children and youth with autism and training to professionals and clinicians responsible for screening families of diverse populations when English is not their primary language and when they have different cultural views on child development. Under this project to date, PATH/FVCT has provided support and training to 97 parents and professionals, including CT’s Medical Initiative Programs, Birth to Three Provider programs, insurance companies and parent support groups. As part of this training, PATH/FVCT developed a video to educate the public on the top 10 things a child with ASD wants you to know. This training and the video have been very well received and we continue to get requests for this resource from across the state.
Shared Resources:
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
An 11-slide presentation highlighting important strategies to manage a nonprofit.