IPUL provides assistance and educational opportunities to families of CSHCN to help them navigate the health care system, participate in all levels of decision making, access a medical home, plan for transition, collaborate with state committees and councils, address barriers and participate in opportunities to improve systems of care.
Activities/Methodology:As a family led organization IPUL, through collaborative efforts, will assist families in making informed choices about health care, provide training, information and resources to families of CSHCN. Collaborative partners, regional meeting space, web-based software listserv, website and newsletters will reduce costs and increase opportunities for families.
Pediatric Patient-Centered Medical Home Demonstration
IPUL partners with the Idaho Department of Health and Welfare, Division of Medicaid, in the Children’s Healthcare Improvement Collaborative to provide support and information to families who serve as parent partners in three medical home pediatric practice sites throughout the state. Utilizing resources from Family Voices National and other states, we created a medical home workshop which includes an overview of what comprehensive, coordinated, family-centered care looks like for CSHCN, as well as Idaho-specific information. The parent partners, care coordinators, medical home coordinators, and project staff have leaned heavily on IPUL to provide this training and resources both internally within the project and to parents of children with special health care needs. This model of parent/professional collaboration is working very well. We have offered approximately 20 training workshops over the past two years, and have trained both parents and providers within the practice clinics. Both groups report an increase in knowledge, access to services, and improved parent/professional collaboration. The partnership has now evolved and IPUL is a partner resource in the newly developed Idaho Health & Wellness Collaborative for Children (IHAWCC), which has been established as Idaho’s first Pediatric Improvement Partnership. The Improvement Partnership is a collaboration of public and private partners that uses measurement-based efforts and a systems approach to improve the quality of children’s health care.