Help families make informed choices by providing info/referral services in language family most easily understands in 1-1, training & outreach settings and be satisfied with the services they receive. Provide workshops, 2 leadership academies. Develop new collaborative partnerships w/community groups seeking parent input. Increase family/prof’l partnerships through parent match w/leadership opportunities. Provide physicians w/fact sheets on early intervention & Title V program to increase referrals for CYSHCN. Provide families w/transition fact sheets to help them understand transition process & rights. Facilitate Transition Focus Group gathering community input on barriers to successful transition to adulthood. Facilitate Transition staffing w/ variety of agencies to assist families beginning the transition process. Develop outcome call questions to families in Transition Staffing to monitor effectiveness of support received in staffing; Issue preliminary & final reports on Transition Staffing outcomes. Develop grant tracking form as mechanisms for monitoring program success. Provide professional development opportunities to FHF resource centers & community partners. Require FHF Resource Centers to attend cultural competency training. Through these activities, we expect increased knowledge of parents, improved health related outcomes, increase family/prof’l partnerships positive outcomes for transitioning youth & health outcomes for CYSHCN.
- Health Care: Information on what adolescents will need to transition from pediatric care to adult health care and what options are available to them
- Education: The importance of having a transition plan in an IEP and information on transitioning to post-secondary education
- Employment: Information and resources on employment opportunities and independent living
- Advocacy: Education on self-advocacy