Maryland families of CYSHCN struggle to piece together a patchwork of fragmented services and to be strong advocates to effect systems change. The project purpose is to provide the information and support that families of CYSHCN require to effectively partner in decision-making at all levels & improve their participation as partners in decision-making and satisfaction. The F2F will provide information about organizations or services for children and families to enable improved access to health and education and will promote family/professional partnerships by providing information, training, and guidance regarding the care and needs of CYSHCN to health care and other professionals.
The F2F will provide direct one-to-one assistance on effectively navigating the public and private health care systems and community-based services by providing quality information, resources, and support in a culturally competent manner to families who are seeking information and resources, helping them make informed choices about healthcare. Assistance for families will be provided in person, by telephone, or by email. The project will disseminate information for families and a providers through a variety of print and electronic methods. The project will provide training for families, especially families from underserved communities, designed to address system issues and to develop leadership skills. Training will be provided on how to effectively navigate health care systems, accessing community based services, medical home, youth transition to adult health services, how to work with other parents to understand the needs of CYSHCN, and how they can be addressed through public and private health care plans. An annual health leadership training program will be conducted; graduates will receive follow-up training and mentoring. The F2F will provide information, training, and guidance to health professionals in a variety of ways, including a Family Faculty home visiting program with health professionals in training, partnership with developmental screening training initiatives in the state, and through statewide collaborative efforts with a variety of stakeholders.
Maryland Community of Care Consortium for CYSHCN
The Maryland Community of Care Consortium for Children and Youth with Special Health Care Needs (COC) is a working group of over 150 diverse stakeholders, including families, providers, advocates, consumers, administrators, and professionals from the public and private service systems. The COC meets quarterly and offers a forum for information exchange, problem solving, consensus building, and collaborative action. Using the national agenda for CSHCN and core outcomes as a starting point, the COC works to improve systems of care for Maryland CSHCN and their families. Organizations and individuals across the state have formed new partnerships that positively impact and effectively address gaps and barriers in services, such as bringing mobile rehabilitation services to rural areas. In addition, this statewide initiative has spawned regional COC consortia that are working at the local level to further improve services for CSHCN and their families.
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
All health plans deny payment one time or another for a variety of reasons. Denials can and should be appealed. This workshop covers the appeal process available to families. Learn strategies that can make your next appeal successful. Presentation was developed with blended funding from F2FHIC grant and MD Family Access Initiative grant from MCHB.
The Medical Assistance (Medicaid) program in Maryland can be very helpful to children with disabilities and special health care needs. This basic introduction to Medical Assistance will explain the various programs, why they can be helpful, and who is eligible to apply. Presentation was developed with blended funds from F2FHIC and MD Family Access Initiative grant from MCHB in partnership with Georgetown University.
A 4-page document of definitions of terms frequently used in understanding health care financing and community based services for children and youth with special health care needs.
Confused about how to navigate the maze of managed care? Learn the ins and outs of getting services in a managed care health plan. This workshop takes you through the steps of referrals, authorizations and other barriers to services and providers that children with disabilities and special health care needs utilize. Presentation was developed with blended funds from F2F grant and MD Family Access Initiative grant from MCHB in partnership with Georgetown University.
This presentation offers practical step-by-step information to help families of children with disabilities and special health care needs sort through their health care plan options. Bring your open enrollment packet. Learn to read the jargon and select the plan that best matches your family's needs. Presentation was developed with blended funds from F2F grant and MD Family Access Initiative grant from MCHB in partnership with Georgetown University.