Goal 1: A parent/professional partnership is utilized in creating a system of care for CYSHCN in Michigan that is family centered, culturally competent, and appropriate.
Objective 1: Provide educational opportunities for families of CYSHCN that address; partnering in decision making, medical home, adequate insurance, comprehensive screening and transition to adult care.
Objective 2: Provide educational opportunities for professionals to build family/professionals partnerships and to promote a family centered, community based and culturally competent system of care.
Objective 3: Collaborate with the state committees and councils to address barriers and participate in opportunities to improve systems of care through the six national 2010 objectives for CYSHCN.
Goal 2: Michigan F2F HIC serves as a centralized resource center for families of CYSHCN and professionals involved in their care. Objective 4: Provide technical assistance, information and resources to families and CYSHCN so they can secure appropriate services.
Objective 5: Serve as a clearing house for information and support to Michigan families of CYSHCN, organizations, and providers.
Objective 6: Report trends and family concerns regarding health care coverage, resources, and support to relevant state agencies and organizations using quantitative and qualitative data.
Methodology: The project will utilize a Parent Coordinator to oversee the activities defined in the workplan. MPHI will collaborate with Children’s Special Health Care Services and other partners outlined below by creating a collaborative structure to assist families in partnering in decision making at all levels.
Coordination: Partners in the project include Michigan’s Title V program for CYSHCN, Children’s Special Health Care Services, the Family Center for Children and Youth with Special Health Care Needs, HRSA Core System Outcome National Centers, Condition specific National Centers, and state and community based advocacy organizations outlined in the workplan.
Evaluation: The project evaluation will include both “process” and “outcome” evaluations. The process evaluation will be conducted by means of documenting program activities and comparing them to the work plan goals, objectives and activities. An outcome evaluation will be conducted annually, and at the end of the project, to evaluate the impact of the project in accomplishing its identified, measurable outcomes.