The MN F2F will support parents in making informed treatment decisions for their children with special health care needs. Due to the complexity of the health care system, families, including those who are culturally and racially diverse, need assistance to partner with health care professionals and be fully involved in all levels of decision-making. The MN F2F will: provide training and individual assistance, conduct outreach to diverse families, utilize innovative technology and develop materials in multiple languages and formats, collaborate with MN Title V and other programs, build parent leaders, and evaluate the project.
New technology such as podcasts, videos, social networking, and text messaging will engage youth, families, and professionals. Culturally and linguistically competent services will be provided by PACER’s African American, American Indian, Hmong, Somali, and Hispanic/Latino advocates. Trainings, publications, and multimedia will address critical topics such as Affordable Care Act, medical home, prevention and screening, and transition to the adult health care system.
Workshop: Stay on the Right Track: Help Your Child Eat Well, Stay Fit, and Lead a Healthier Lifestyle
This collaborative workshop offers information that parents of children with disabilities and special health care needs can use to help the whole family live a healthier lifestyle. Information on nutrition, exercise, well child visits, and community recreation resources is presented by a nutritionist, exercise physiologist, pediatrician, and F2F staff. Our most recent workshop was attended by 98 families. As a result of the workshop, one parent approached her local recreation center to explore the possibility of developing a class specifically for CSHCN. Ten children between the ages of 6 and 12 now participate in the weekly class. They play soccer, floor hockey, ride bikes, dance and participate in obstacle courses. Meanwhile the parents get to know each other in the bleachers and exchange experiences and resources. Feedback: “This type of networking for both the parents and the kids doesn’t happen often when your child has a disability or special health care need. By having the workshop, PACER’s F2F was the spark to make this community recreation class happen.”
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A 178 page guidebook of tips and programs/resources to help your baby through adulthood obtain the services they need, include health, education, advocacy, legal resources. Chapters include Getting Organized, Managing Your Finances, Preparing Your income Tax, Family Relationships, Your Health Care, Life & Disability Insurance, Planning Your Future, Planning Your Child's Future, and Resources. Chapters may be dwonloaded for printing or read online.
Billing medicaid for school based services is an important component for funding the needs of children who have special health care needs. When school districts and state department of education administrators partner with parents it can help expand the program. Billing for school based services in Minnesota in 2007 brought in more than 20 million dollars to the schools to help meet the needs of children and youth who have special health care needs.