PTI Nebraska's Family to Family Health Information and Education project increases the knowledge and understanding parents regarding the specific health conditions and disabilities of their children. The project increases self knowledge and understanding for parents, youth and medical professionals as they plan for transition from high school. It is crucial that the transition plan include the establishment of a medical home along with housing, employment and higher education. The major eimphasis of this project is to support families whose children and youth have special health care needs and disabilities allowing them to care fo their children in their homes and communities. Activities/Methodology:
- Provide one on one consultation to families and/or students
- Provide families and/or students with relevant and accuate information
- Disseminate up to 50,000 pieces of printed & electronic information annually
- Maintain a library of resource information in English & Spanish & find relevant information in other languages and formats as requested
- Monitor and maintain the English/Spanish website
- Offer training curriculum for families & professionals that provides information on health care issue and the ACA that pertain to families with CYSHCN
- Facilitate the formation of parent & health professional partnerships
- Assist families with finding or talking to their children's doctors about the development of a medical home within their practices.
The F2F through PTI Nebraska offers webinars twice a month to families and professionals across the state on topics of interest. Many topics are chosen based on input suggested on the webinar evaluations. The webinars are presented twice during the day, during lunch hour and in the evening. This provides families options to participate at times that are convenient. Webinars are enhanced with a teleconference connection. Initially, we were concerned that not all families would know how to connect to a webinar. However, the teleconference support provided through a voice link assists with the computer connection as well as providing an easy way to voice questions in a manner that everyone understands. The webinars are well attended and have reached both urban and rural families better than any other method of sharing information. In the past year 126 parents and professionals have participated from all regions of the state. Topics have included the Individual Health Care Plan, Teaching Teens about Health Care, Disaster Preparedness, Transition, and Seizures and Children.
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A 24-page training booklet that addresses the key components of an IHP: diagnosis/condition, current assessment, routine procedures/interventions and emergency care procedures. The training also describes the roles of the family, pediatrician, school nurse, and school administrators in developing and using the IHP. In addition to the training, participants receive the following materials: IHP Tool for Schools, Guidelines from the NE DHHS on Nursing Care Decision Making at School, Evacuation Considerations of Special Needs Staff and Students, and the School Nursesâ€™ Roll in Connecting Health and Achievement.