In NH, there is lack of adequate health coverage adn lack of supports/services for families of cshcn. Project will provide training, education, information, support to families of cshcn and providers who serve them re: ACA, medical home, transitions, systems, etc. Increase youth knowledge & youth participation in their health care & health care systems. work with families, youth and providers. Activities/Methodology:
- Build staff capacity on ACA. Nurture relationships HRSA funded grantees. Utilizing existing partnerships. Assist families to id options of care, range of services, proffessional knowldge. Increase professional knowledge. Provide Supporting materials. Annual web based surveys. F2F network: training & core competencids developed, sessions infused into others trainings, matches supported, evaluation done. Develop ACA web page, 3 ACA documents for families, disseminate materials. Mentor families, provide trainings, Evaluate trainings. Do annual satisfaction surveys. collaborate with NH Partners. Support family attendance at trainings, advisory committees, councils,etc. Random evaluation calls.1/1 phone support, e-mail, face to face support. Outreach to community health centers. Develop & disseminate materials.
- Youth Educating Adults about Healthcare (YEAH). Develop/disseminate mateerials, outreach 3/year, support youth leaders, recruit new, support exiting leaders. Hold 3 family/information sessions. YEAH id/sponsor 3 trainings. evaluate trainings.
- Collect, track & report on data.
Schools & Medicaid
In the process of making a rule change, NH Department of Health and Human Services (DHHS) created a tenuous situation for families who were allowing their child’s school to bill their Medicaid for medically necessary services under the Medicaid to Schools provision. The newly implemented rule allowed the denial of “Duplicative Services,” leaving it unclear if families would be able to access services such as PT/OT/Speech, nursing, etc. outside of the school through their Medicaid coverage. When the rule committee declined to acknowledge the confusion, families began to consider refusing school access to their Medicaid, thus leaving a potential hole of thousands of dollars within NH School budgets.
A committee consisting of NH Family Voices and other partners (The Parent Training and Information Center, NH Association of Special Ed Administrators, Disabilities Rights Center, Developmental Disabilities Council, MSBT—a private company providing Medicaid Billing for schools, and the NH School Administrators Association) worked to educate legislators of this issue, resulting in new legislation. The bill faced challenges around family privacy but with effective teamwork, groups came to an agreement allowing families access to the needed services without giving up their privacy. Work from all parties resulted in an amendment clarifying that only a list of “related services” would be shared by school systems with DHHS and that such services were not considered “duplicative” if they were deemed “medically necessary” by a physician.
The bill successfully passed the house and will now go back to the Senate. We are expecting it to pass and be signed by our Governor, a win for families and for the system.
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A 178 page guidebook of tips and programs/resources to help families in New Hampshire guide their child from infancy to adulthood; provides information on services, including health, education, advocacy, legal resources.
Survey report of how families (new Hampshire) prefer to receive information, what they know of "Medical Home" and transition concerns.
A 12-page booklet that defines the term best practices and discusses identified best practices for CYSHCN, including family-centered care, community-based care, coordinated care, cultural competency, medical home and family/professional collaboration. National and state resources (New Hampshire) are provided.
A description of EPSDT within NH Healthy Kids Gold (NH Medicaid for children)
This brochure is designed to help guide grandparents in their efforts to raise and care for their grandchild and to find the needed resources and programs for the child as well as themselves.
Tips to help caregivers of a child in a spica cast, including tips in such areas as checking for skin or circulation problems, positioning or turning a child in a spica cast, when to call the doctor, toileting, and diet and nutrition.
Tips to help prepare you and your child for a doctor's visit, including transportation tips.
Practical tips and questions to ask once a decision is made to prescribe medication.