NEW JERSEY

35 Halsey Street 4th Floor
Newark, NJ 07102
Phone:  (973) 642-8100Fax:  (973) 642-8080Toll-Free:  (800) 654-7726
      
Primary Contact(s):
Diana Autin (973) 642-8100 - Health, family support, mental health
Mercedes Rosa (973) 642-8100 - Health, family support, diverse families
Lauren Agoratus (973) 642-8100 - Health, family support, mental health
Jeanne McMahon (973) 642-8100 - Director, Health & Family Support
Deepa Srinivasavaradan (609) 665-2696 - CSHCN, screening, diverse families
Jeannette Mejias (973) 687-1417 - CSHCN, screening, diverse families
Kasey Dudley (973) 642-8100 - Maternal child health, CSHCN, diverse families
Nicole Pratt (973) 642-8100 - Maternal child health, CSHCN, diverse families
Ayo Bajomo (973) 642-8100 - National Center for Family Professional Partnerships
Grant Abstract Summary:
The purpose of SPAN's Family to Family Health Information Center is to improve outcomes for NJ's CYSHCN and their families through empowering families to overcome barriers to navigating systems, accessing needed services, and partnering with professionals. SPAN's F2F will provide families with information, training, technical assistance, leadership development, and support to enhance their capacity to partner at all levels and improve their satisfaction with services. The F2F Project Director, 2 Regional Coordinators, and the Bilingual Coordinator will work directly with families and professionals and partner with SPAN's 3 State Implementation Grants to effect systems change.

Activities/Methodology: Train 75 parents of CYSHCN/year (25 per region) as volunteer SPAN Resource Parents, committed to providing 60 hours of volunteer service; annually assist 4,000 families of CSHCN to (a) secure health coverage, (b) identify a “medical home,” (c) ensure that medically-necessary services for their CSHCN are covered by health insurance, (d) develop effective partnerships with providers, (e) secure access to needed support services in childcare, schools, community settings, and their homes, and/or (e) receive the emotional, parent-to-parent support they need to strengthen their parenting and advocacy skills, through TA and training; provide intensive, ongoing support to families with limited English proficiency through facilitation of regional support groups for immigrant and LEP families of CYSHCN; build the leadership of 200 families of CYSHCN (100/year) and their capacity to improve health policies and practices (at least 25 parents/year will join the Community Consortium of Care and participate in ongoing workgroup and public policy activities); impact professionals through participation in 30 medical home visits each year, sharing experiences with health professionals in hospitals and FQHCs, collaborating with the Boggs Center UCEDD as they provide training to interns on the six core outcomes, and providing training to community-based services on the six core outcomes and resources; and develop, pilot, translate and disseminate useful materials and measure their impact.
Highlighted Activity:
Family-Led Screening Training and Family Support
Through our Statewide Community of Care Consortium for Children with Special Healthcare Needs, SPAN facilitates an Early and Continuous Screening Workgroup that is focused on enhancing early screening using validated tools and connecting families to immediate support. Last year, SPAN trained 195 staff of 15 Federally Qualified Health Centers as well as pediatric and family residents at RWJ Medical School. Outcomes included statistically significant increases in awareness about the importance of developmental screening and community resources, staff understanding of the benefits of using AAP screening guidelines and recommended tools, and intention to use what was learned. SPAN also provided diverse Family Resource Specialists at over 18 community-based “quick peek screenings” hosted by Children’s Specialized Hospital, helping underserved (immigrant, low literacy, limited English proficient) families to access immediate parent-to-parent support, make follow-up evaluation appointments, and get connected to community-based resources.
Shared Resources:
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A 1-page chart of MCHB Outcomes and the activities undertaken by SPAN of NJ to address these in 2015.
A 1-page chart that lists the Core Outcomes and the activities of SPAN (NJ) to address those outcomes.
A presentation by Diana Autin (NJ), FV National Field Co-Coordinator and Mercedes Rosa (NJ) made at the 2012 F2F HICs Grantee Meeting that provides tips and strategies to reach families from diverse communities.
A 1-pager that describes the stages of family leadership.
A 1-pager from SPAN of NJ about why parents get involved and how do parents stay involved.
A 2-page outline of lessons learned from Statewide Parent Advocacy Network, New Jersey’s Parent Training and Information Center's project, in collaboration with New Jersey Deaf-Blind FACES and the National TA Center for Children/Youth Who are Deaf-Blind for Spanish-speaking Families of Children with Deaf-Blindness.
This 12-page report reflects the experiences and recommendations of the staff of the Culturally Competent Outreach (& Support) Project of the Statewide Parent Advocacy Network, New Jersey’s Parent Training and Information Center, in collaboration with New Jersey Deaf-Blind FACES and the National TA Center for Children/Youth Who are Deaf-Blind. The recommendations are based on over 1½ years of experience successfully identifying, reaching out to, engaging, supporting, and empowering Spanish-speaking families of children with deaf-blindness in New Jersey.
This powerpoint, focusing on effective strategies to use technology to reach culturally and linguistically diverse and underserved families, was presented at the US Department of Education's Leveraging Resources conference for their Technical Assistance & Dissemination projects.
This brief powerpoint presentation (with trainer notes) provides an overview of strategies to partner with family organizations to address and overcome health disparities, particularly within immigrant communities.
This is one of SPAN's workshops on cultural competence for professionals and advocates; it was also presented at the 2007 Family Voices conference.
This brief guide summarizes some of SPAN's learnings in working to reach, support, and empower immigrant families of CYSHCN.
This powerpoint was the basis of a national SPAN presentation on the issue of addressing disparities in children's mental health.
This workshop was co-presented by SPAN and the National Center for cultural Competence at a national conference for family organizations, providing an overview of the NCCC's Cultural & Linguistic Competence Self-Assessment for Family Organizations
This is brief parent guide on the education and language access rights of immigrant & limited English proficient children and families.
This is a brief parent guide in Spanish on the education and language access rights of immigrant & limited English proficient children and families.
This is brief parent guide in Haitian Creole on the education and language access rights of immigrant & limited English proficient children and families.
This workshop is a component of a four-part series that we facilitate for professionals working with diverse families through the Partnership for Family Success, a collaboration with SPAN, Parents Anonymous of NJ, the NJ Alliance of Family Support Organizations, and Family Intervention Services.
This powerpoint is a component of a four part professional development series facilitated by the Partnership for Family Success.
This power-point presentation briefly portrays the helpful resources for families of CYSHCN, particularly family-led organizations that exist in every state.
This powerpoint is a component of a four-part professional development series facilitated by the Partnership for Family Success.
This powerpoint presentation provides an overview of the role of parents in preventing and addressing childhood obesity.
This is a presentation for organizations that have or want to have parent advisory boards, and for parents who are on parent advisory boards.
This guide provides an overview of the requirements of three critical laws that protect the rights of students with disabilities: IDEA, ADA, and Section 504, and summarizes the similarities and differences between these three laws.
This powerpoint presentation builds on a framework developed by Community Catalyst and provides an overview of each of the major provisions of the Patient Protection and Affordable Care Act relating to children, especially children with special health care needs.
This 32-page parent guide provides an overview of the key systems providing services and supports to children and youth with special health care needs and disabilities, and how to advocate within those systems.
This powerpoint presentation accompanies the guide to ensuring that IEP/IFSP meeting facilitation addresses issues of power imbalance in knowledge, skills and resources between families and professionals in IEP/IFSP processes.
This workshop presentation provides information on the "three R's "of child care for children with special needs: "R"ed flags in child development; "R"ights under the Americans with Disabilities Act, Section 504 of the Vocational Rehabilitation Act, & IDEA; and "R"esources to support inclusion of young children in child care.
The revised IDEA 2004 strengthens accountability and focuses on outcomes for infants and toddlers with special needs and their families. This presentation outlines the new monitoring and State Performance Plan requirements for early intervention and the role of stakeholders in setting targets and planning activities to improve early intervention services and outcomes.
A presentation that examines attitudes and supports needed to involve and keep parents involved as team members with professionals.
A presentation that discusses advocacy and the elements necessary to effect social change: strategic planning, information and research, involvement of others, support for parent participation, diversity and outreach, leadership building, understanding public policy and the legislative cycle, and effective advocacy through letter writing, visiting with legislators, and testifying.
A presentation that defines family support and details the components of successful family support programs: beliefs in principles, effective practice standards, and effective administration standards.
This workshop presentation provides information on the philosophy of family leadership in child welfare reform, research findings on parent leadership development, and strategies to engage families in child welfare reform. This workshop was presented by SPAN and Parents Anonymous of NJ to the staff of the NJ Department of Human Services' Division of Prevention and Community Partnership as part of NJ's child welfare reform efforts
The concept of facilitating IEP and IFSP meetings is a new development in special education. But the unequal power relationship between families and professionals in the IEP and IFSP processes requires that special attention be paid to leveling the playing field to ensure equity and fairness in the process. This guide will be disseminated for the first time at the CADRE Conference on IEP/IFSP Facilitation October 28-29, 2005. The accompanying powerpoint presentation is also posted.
A presentation that provides the definition of "medically necessary", a term often used by insurers to cover specific services.
A presentation on this program, a federal and state-funded health insurance program which helps uninsured children receive affordable health coverage.
A presentation that elaborates on the components of parent professional partnerships, including attributes of successful partners, barriers, roles, communication and family involvement strategies, and helpful tips to build partnerships.
A presentation that outlines the components of different types of medical insurance: Fee-For Service, HMO, POS, PPO, Managed Care, Medicaid Managed Care, EPSDT, and NJ Family Care.
A presentation that discusses the Medical Home concept, a coordinated & respectful health care partnership among a child, his/her parents and the child's Primary Care Provider.
A presentation that describes an Individual Health Plan (IHP), a written agreement among school staff, the student, the student's provider and family to ensure access to an education, whether or not the student is classified as eligible for special education.
A presentation that describes this Medicaid managed care system for NJ residents.
A presentation that describes the Early & Periodic Screening, Diagnosis, & Treatment Program, which is Medicaid's comprehensive and preventive health program for children under 21.
A presentation especially for families to help them advocate for social change. Includes discussion on developing leadership skills, preparing a vision, involving others, and making change happen.
Una presentación especialmente para que familias les ayuden a abogar para el cambio social. Incluye la discusión sobre habilidades de la dirección que se convierten, preparando una visión, implicando otras, y realizando el cambio suceda.
A 51-page A comprehensive guide on advocacy and effecting change.
A family-friendly brochure that discusses New Jersey's Medicaid Managed Care. Fact Sheet 1 of 7.
A family-friendly brochure that discusses how you can help establish good relationships with your child's Medicaid Managed Care providers. Fact Sheet 3 of 7.
A family-friendly brochure that discusses how to resolve your problems or deal with denial of services under Medicaid Managed Care. Fact Sheet 4 of 7.
A family-friendly brochure that discusses eligibility requirements and relationships among welfare, SSI, and Medicaid in New Jersey. Fact Sheet 5 of 7.
A family-friendly brochure that defines terms by categories: General, Benefits Limits/Restrictions, Services, Children with Special Health Care Needs or Disability, People, Levels of Care, Problem Resolution, Enrollment/Assignment, Payment. Fact Sheet 6 of 7.
A family-friendly brochure designed to introduce families of children with special health care needs and/or disabilities to New Jersey Care 2000+, the state Medicaid managed care program. Fact Sheet 7 of 7.
CONECTÁNDOSE EN LÍNEA SIN UN COMPUTADOR O SIN ACCESO AL INTERNET EN EL HOGAR: MINI-GUÍA PARA PADRES SOBRE COMO ACCEDER A LOS RECURSOS DEL INTERNET A FIN DE AYUDAR A SUS HIJOS
GETTING ON LINE WITHOUT A COMPUTER OR INTERNET ACCESS AT HOME: A PARENTS’ MINI-GUIDE TO ACCESSING INTERNET RESOURCES TO HELP YOUR CHILDREN!
This powerpoint presentation builds on a framework developed by Community Catalyst and provides an overview of each of the major provisions of the Patient Protection and Affordable Care Act relating to children, especially children with special health care needs
This powerpoint presentation provides an overview of the role of parents in preventing and addressing childhood obesity.
A power-point presentation briefly portrays the helpful resources for families of CYSHCN, particularly family-led organizations that exist in every state.
NJ Resource Highlight:
NJ Resource Highlight:
NJ Resource Highlight: