PENNSYLVANIA

2325 E Carson Street Suite 100A
Pittsburgh, PA 15203
Phone:  (412) 281-4404Fax:  (412) 281-4408Toll-Free:  (866) 950-1040
    
Primary Contact(s):
Jeannine Brinkley (412) 281-4404 - Project Director
Kelly King (412) 281-4404 - Individual Assistance; Systems Change
Jeanine Schultz (412) 281-4404 - Training
Grant Abstract Summary:
Our Goal: Use the knowledge & experience of families who have expertise in health care systems to increase the percent of children & youth with special health care needs (CYSHCN):
families partner in decision making at all levels & are satisfied with services they receive;
receive coordinated, ongoing, comprehensive care within a medical home;
once identified through infant screening, are linked to a medical home, family-support and early intervention by six months of age;
families have adequate insurance to cover the services they need;
families report that community-based service systems are organized so they can use them easily; and • receive the services necessary to effectively transition to all aspects of adult life.

Activities/Methodology: The proposed project will achieve this purpose and broad goals by:
  • Assisting diverse families of CYSHCN to make informed choices about health care in order to promote good treatment decisions, cost effectiveness and improved health outcomes;
  • Providing information regarding health care needs of and resources available for CYSHCN;
  • Identifying successful culturally-competent health delivery models and working for their widespread implementation;
  • Developing with representatives of health care providers, managed care organization, health care purchasers, and appropriate State agencies, models for collaboration between families of CSHCN and health professionals, and assisting in their implementation with diverse families;
  • Providing training and guidance regarding the care of CYSHCN to families and professionals, including health and other service providers and state, county, and local agencies, including government and community-based organizations; and
  • Conducting culturally competent and effective outreach activities to families, health professionals, schools and other appropriate entities.
Highlighted Activity:
Parent Advocate Summit
This summer the PEAL Center hosted a weekend Parent Advocate Summit, reuniting trained Parent Leaders. Our goal was threefold: 1) to establish an ongoing statewide network of parent leaders/advocates, 2) to empower leaders to engage in collective advocacy, and 3) to engage parents in learning opportunities in order to help Parent Leaders develop a personal advocacy plan. The energy of the parent leaders was revitalizing as they brainstormed, networked, and galvanized their plans. Individuals identified issues of concern and laid out steps to accomplish their stated objectives. Thirty-five parent leaders attended the Summit, accompanied by 47 family members, totaling 82 attendees.

Feedback: “It was inspiring to hear what other parent advocates were working on and beneficial to see the goals they focused on. This helped me to see what the world of the possible was for me.” “We are all advocates thanks to the wonderful training we’ve received from PEAL.”

Video segments from the Summit that have been incorporated into our Online IEP Mini-Series, an E-Learning Course, can be found on our website.
Shared Resources:
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
Un folleto que describe los servicios proporcionados por F2F PEAL, el F2F en Pennsylvania, junto con la información de contacto para obtener servicios F2F.
A brochure describing the F2F services provided by PEAL, the F2F in Pennsylvania, along with the contact information to obtain F2F services.
PA Resource Highlight:
PA Resource Highlight:
PA Resource Highlight: