With increasing demands on families of children and youth with special health care needs (CYSHCN), families must be informed, educated and supported in their efforts to help their children reach their full potential and be fully integrated into their communities. The RI Family to Family Health Information Center will educate and support families of CYSHCN and the professionals caring for them, organize and host an annual family/professional conference, and develop and expand capacity to affect public policy efforts that can positively impact vulnerable children and families.
Activities/Methodology: Our F2FHIC will host workshops, training opportunities and provide peer support through support groups, networking activities, and one to one support through our Resource Center. We will track emerging and ongoing challenges that families encounter through our intake process and feedback from the families and professionals we serve and address those issues by incorporating these topics into our ongoing activities. We will disseminate information through our agency newsletter, e-mail list serves and through the use of our Family to Family Network of RI (an established network created by and for families of children and adults with special needs). We will work closely with other RIPIN programs to expand our reach to all areas of RI through collaboration with staff and Directors of these programs; Parent Information & Training Center (PTIC), Parent Information and Resource Center (PIRC), Pediatric Practice Enhancement Project (PPEP), Peer Navigator Program/ Communities of Care (COC), Early Intervention (EI) Parent Consultant Program, and our various medical home initiatives.
Support Group Facilitator Training with Technical Assistance Follow-up
RIPIN’s Support Group Facilitator Training was created to educate and build skills for parents and professionals who are interested in started or revamping a support group. We begin this 4-hour training with an icebreaker activity and then delve into a discussion on what types of groups the participants are interested in. This guides the training to be specific to the participants needs. The goals of this particular training are for the upcoming facilitators to learn how to listen more effectively, be more self-confident and identify strategies to enhance support groups. The trainer continues to support and follow-up with the trainee during the start-up of the group and to mentor them on how to develop the group so it becomes self-sustainable.
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A brochure describing Family to Family of Rhode Island, a network created by families of children and adults with special needs sharing Experiences, Information and Support! (English and Spanish)
A brochure describing parent consultant services available at Hasbro Childrenâ€™s Hospital
Early Intervention Program
A brochure describing RIPIN's program to assist all military families including those raising children with Disabilities, Special Needs & Developmental Delays
A brochure about RIPIN (English and Spanish)
A brochure describing Family Voices (English and Spanish)
A brochure describing the Parent Consultant Services offering information and support in such areas as Parent Education, Program Eligibility, Health Information, and Community Resources through the Pediatric Practice Enhancement Project (PPEP), a program developed to assist and support pediatric primary and specialty care practices in providing high quality health services within a medical home.
A flyer describing RIPIN's Parents as Teachers program, a program that offers home visits by a certified parent educator, group meetings with other parents to share parenting experiences and talk about other topics, play groups, developmental screenings, connections to community resources, and prenatal visit. (English and Spanish)
A description of programs and services, including contact information, in RI; includes information on early childhood, education, transition, health insurance, early and periodic screening, supports for families of CYSHCN, assistive technology and more.
An initiative of RIPIN, AAP, Neighborhood Health Plan and RI DHHS to place parent consultants in pediatric practices to help families of CYSHCN