Activities/Methodology: With over 739 volunteer Support Parents, FCSC is able to match parents with many diverse needs and concerns. As the South Carolina Family-To-Family Health Information Center (SC F2F HIC), FCSC will build upon the existing support for families and become known equally for the information and education that both parents and professionals can receive through the center. The proposed project relies heavily on the talent and expertise of families of children with special health care needs in the provision of technical assistance, training and mentoring.
A key strategy within these methods is working in partnership with other organizations. Family Connection of SC (FCSC) has established relationships with professionals who value the partnership with families to guide policy and programs including state agencies, institutions of higher education, and organizations that serve CYSHCN and their families FCSC also has parents who recognize the importance of having a voice in all systems levels and understand family centered-care. Our efforts to increase family/professional partnership at all levels will contribute to increased access to comprehensive services through the medical home; early and continuous screening, evaluation and diagnosis; adequate public and/or private financing of needed services; organization of community services so that families can use them easily; and successful transition of CYSHCN to all aspects of adult health care, work, and independence.