This project assists a significant number of families and professionals to better understand the importance of family centered care and promoting health care system(s) that have capacity, flexibility, and a strong commitment to appropriately serve children and youth that experience special health care needs. The overarching goals are to help State Leaders, families and community members see the benefit of a model supporting a preventative approach to healthcare for CYSHCN within the current challenges of dwindling resources. The program will implement new and creative solutions that include strong partnerships, individual assistance, and strategies that include both families and transitioning youth contending with current access challenges Activities/Methodology:
The project staff has met with various Stakeholder groups and agencies to build on already established relationships. Staff is involved with both the County ADRC and State ADRC and helping in developing marketing and outreach strategies that will increase involvement of families from typically under-served or unserved communities. Emphasis is on helping build knowledge and participation of families for whom English is a second language or who have other challenges in gaining healthcare literacy based on geographic distance to resources or socioeconomic issues. The staff is setting up focus groups across WA State to gather information regarding concerns and challenges. This will be pushed forward to provider entities and the insurance commission to help build and/or strengthen policy and service delivery. Staff has participated in resource fairs targeted to help families gain new knowledge. In this quarter the staff participated in Ethnic Fest (an annual gathering in the State that draws over 15,000 families) and shared information regarding the ACA, Medicaid, CYSHCN, and other areas that were of interest to the families. Some specifics:
- 5 individual parent meetings
- 1 training on SSI with 10 participants
- 3 resource fairs with an approximation of 360 participants
- Working with state PTI on a youth summit
- Maintaining Facebook and Twitter accounts
Family, Youth, Systems Partners Round Table Project
We are working with the Washington State Division of Behavioral Health and Recovery, mental health providers, and families and youth who are receiving services to create local and regional forums that provide input and governance and recommend changes needed in the system of behavioral health services. These partners also work in roundtables with a group of representatives from all regions to provide direct recommendations to leadership and legislature. These roundtables are currently underway in 6 counties and will be expanding to 13 counties. This project has allowed families and youth to have a direct impact on their own mental health services and treatment plans. To date we have worked with 205 families and youth, as well as representatives from family organizations, State agencies, and many others. The participating families and youth have also created and presented awareness events for the community around bullying and mental health stigmas.
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A 19-slide presentation to help families understand and evaluate the medical home model for their child.
A 10 page tool for families of newly diagnosed children with autism and other disabilities to help them learn about services. It provides short definitions of therapeutic services and descriptions and contact information for state services, including family-to-family support.
A brochure that explains the activities and services of the WA F2F HIC, PAVE.
My Childâ€™s Map to Services, a guide for families in accessing community services