WISCONSIN

PO Box 5070 
Madison, WI 53705
Phone:  (608) 220-9598Fax:  Toll-Free:  
Primary Contact(s):
Barbara Katz (608) 220-9598
Lynn Renner (608) 828-9958
Grant Abstract Summary:
The Family Voices of Wisconsin Family-to-Family Health Information and Education Network proposes to continue to serve the needs of Wisconsin families for accurate, timely and understandable information to support their children with special health care needs. Families throughout Wisconsin will benefit from this Network because it will strengthen parent’s ability to access health information and resources, navigate the complex service systems, and develop leadership skills to assure that all parents of CYSHCN are partners in decision making.

Activities/Methodology:
Goal 1:
*Monitor and identify key opportunities for parents to participate in ACA implementation activities and other public policy initiatives
*Send out information monthly via email and/or hard copy
*Make newsletters and factsheets available in electronic and hard copies, and archive on web site.
*Have newsletters and fact sheets translated into Spanish
*Participate in monthly I&R calls with CYSCHN Collaborators; in regular meetings on Health Care Reform; and in monthly Survival Coalition meetings.

Goal 2:
*Assure that training is culturally and linguistically appropriate.
*Work with Medical Home Leadership Hub to identify content for module.
*Write and pilot module; add supporting materials
*Host monthly conference calls to increase parent’s knowledge and facilitator skills and support parents on listserv
*Hold annual face to face skills bldg. mtg.
*Investigate web-based platforms and services for convening meetings
*Provide on-line training capability

Goal 3:
*Conduct Advocacy for Change Leadership Institute training and support parents through teleconferences and consultation as they implement their action plans
*Work with state DHS staff to monitor emerging issues
*Identify opportunities to influence public policy for CYSHCN
*Support parent involvement in public policy opportunities
*Document unmet needs of families
*Develop and disseminate report to policy makers
Highlighted Activity:
“What’s After High School?”
This training is a “30,000 foot” overview on considerations for transition to adult life for youth with disabilities and/or special health care needs. This is the only training in Wisconsin which looks at transition the way youth and families live their lives and experience this transition across a variety of domains. Topics include moving into adult health care, guardianship and assisted decision making, public education for youth 18 – 21, post-secondary options, employment options, residential options, community participation, self-determination and self-advocacy. This training is delivered in-person to many communities throughout Wisconsin and is also archived as a web cast on the Department of Health Services website. In 2013, “What’s After High School?” was presented in 7 communities, reaching 166 family members, youth and professionals. Feedback from participants: “Gave me more ideas for what to ask for to help plan for the future and also who to ask,” “I’m less afraid to reach out for advice, help and connections,” and “I am now aware of so many more possibilities for my son!”
Shared Resources:
Resources are shared by the F2FHICs to help families, other family leaders and partners. While you are welcome to adapt any of the materials for your organization, we ask that you include an acknowledgement of the author/source in your adaptations and that you let the original author know of your use of the materials. Copyrighted materials may not be reproduced or adapted without the express permission of the author.
A 1-pager that provides data from the National Survey of CSHCN (2009) along with data from the WI F2F (2010-2011) and a family story to provide a perspective of health care for CSHCN and the assistance and activities of the F2F HIC to help those families.
This fact sheet explains how to request a ride or mileage reimbursement for driving your own vehicle to Medicaid covered appointments in Wisconsin.
This fact sheet explains how to request a ride or mileage reimbursement for driving your own vehicle to Medicaid covered appointments in Wisconsin.
This fact sheet explains how to get reimbursed for driving to a Medicaid covered appointment and who qualifies for reimbursement.
This fact sheet explains how to get reimbursed for driving to a Medicaid covered appointment and who qualifies for reimbursement.
This fact sheet explains who may qualify and how to receive reimbursement for lodging and meals for Medicaid covered medical appointments.
This fact sheet explains who may qualify and how to receive reimbursement for lodging and meals for Medicaid covered medical appointments.
This fact sheet provides guidance on what steps to take and suggested interview questions to find the right doctor for your child with special needs.
This fact sheet provides guidance on what steps to take and suggested interview questions to find the right doctor for your child with special needs.
This 15-page report features comments from focus group participants and recommendations for involving families from diverse populations in advisory capacities.
This fact sheet provides information on creating Outcomes which can be used for developing an Individual Service Plan (ISP) for the Medicaid Children’s Long Term Support (CLTS) waiver. It can also be useful for any child as you partner with schools, health care providers and community services and supports.
This fact sheet will help families obtain personal care services for their child using their Medicaid card.
This fact sheet will help families understand and navigate the ordering of incontinent supplies through Medicaid.
This training offer participants a comprehensive overview of how to navigate health care and community supports available to children with special health care needs and/or disabilities. The training is comprised of five modules.
This 27-slide presentation provides an overview of services and supports in three domains of community living (including employment), health, and education.
This 4-page handout provides Internet links to supporting information that is introduced in the “What’s After High School” training
WI Resource Highlight:
WI Resource Highlight:
WI Resource Highlight: