99 Edmiston Way - Suite 101  
Buckhannon, WV 26201
Phone:  (304) 472-5697Fax:  (304) 472-3548Toll-Free:  (800) 281-1436
Primary Contact(s):
Brenda Lamkin, Exec.Dir. (304) 472-5697
Grant Abstract Summary:
The main objective or purpose of the WV HIC Family to Family Health Information Center is to educate, teach and help families advocate for their families and children to access health care, transitional needs and resource information. The center established continuous and new goals and objectives as previously entered in this report. The methodology is based on the philosophy that the Center has begun supporting families by developing and maintaining working partnerships between families and professionals by improving access to health care and health care information. The re design efforts with the state CSHCN program has assisted the collaboration with improving the care coordination system and the medical home model.

Activities/Methodology: Direct services occur with face to face or phone consults to assist families in a variety of ways. The Center continues a multi-faceted approach to educate and empower parents and families of children and youth with special health care needs. Information and referral services are being offered in person, through a state wide toll-free hotline and through e -mail. Information is provided to agencies and community-based groups on how to mentor families to identify and monitor successful health delivery models. The Center increases accessibility of health care for children with special health care needs by linking families,providers, appropriate state agencies, health care providers and managed care organizations with the Medical Home Model initiative in West Virginia . The Center provides families and providers with training and guidance that strengthens family-provider interaction at the local, regional and state wide level. The Center web site features an online Resource Directory, a “Care Notebook ” and numerous guides, fact sheets and publications to help families navigate the CSHCN system so they can make informed choices about their children’s health care . The joint partnerships listed have already collaborated our joint effort to increase our capacity in the community in relation to our mutual goals and objectives.
Highlighted Activity:
CSHCN - Home Visiting Program
The WV F2F in collaboration with the Parent Network Specialist Project and the West Virginia CSHCN Title V Program is completing year three of a complete system redesign, including policy and procedure to better serve families and children with special health care needs in a more comprehensive manner. The past three years progress has been made in improving services to families and CSHCN, expanding Medicaid services, Title 19 waiver services and CHIP enrollment, among others. Most importantly, the team developed new policies and procedures to improve access to services, particularly though a Medical Home and a team driven model of care coordination of services. The focus of this model was a home visit for every child entering the Title V Program done by a team that included Title V staff, a nurse, social worker, F2F staff, and Parent Network Specialists. During the visit the team, completed a “Level of Need Assessment” for the child and family, as well as provided direct assistance and referrals to assist each family. After the assessment of need, the team would follow up with the family to monitor progress. This collaboration has helped hundreds of families access health care, educational, vocational and transition services.