Other National Partners
Administration on Developmental Disabilities
U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. NCFPP Partnership Activities: Participated in EPICS project meeting regarding needs of Native American families; participated in planning committee of Family Support stakeholders and agency strategic planning
Agency for Health Research and Quality (AHRQ)
AHRQ's mission is to improve the quality, safety, efficiency, and effectiveness of health care for all Americans. As 1 of 12 agencies within the Department of Health and Human Services, AHRQ supports research that helps people make more informed decisions and improves the quality of health care services. NCFPP Partnership Activities: The NCFPP has reviewed AHRQ materials and provided guidance on opportunities for family leadership involvement.
American Academy of Pediatrics (AAP)
An organization of 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. NCFPP Partnership Activities: NCFPP participates on the Medical Home Implementation Advisory Committee and the Council on Children with Disabilities Committee to share the family perspective, news about F2F HICs, and materials.
Association of Maternal and Child Health Programs (AMCHP)
A national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs. Family Voices & NCFPP Partnership Activities: Family Voices and AMCHP partnered in 2010 to share conference and gala activities. They also collaborate on an ongoing basis regarding the Workforce Development Initiatives and the Family and Youth Leadership Committee.
Center for Medical Home Improvement
The mission of the Center for Medical Home Improvement (CMHI) is to establish and support networks of parent/professional teams to improve the quality of primary care medical homes for children and youth with special health care needs and their families.
Consumers United for Evidence Based Healthcare (CUE)
A national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best use of evidence-based healthcare (EBHC). CUE, organized in 2003 when the USCC invited advocacy groups to join a consumer advocate-scientist partnership, is a pioneering effort to improve consumers’ ability to engage in and demand high quality healthcare. NCFPP Partnership Activities: NCFPP has provided consumer input and participated in conference.
Center for Child and Adolescent Health Policy
A center at the Mass General Hospital for Children to improve access to systems of care for CYSHCN and their families through identifying and strengthening the evidence base for systems of care and key outcomes of that care.
Federation of Families for Children's Mental Health
A nationally affiliated, parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families.
Maternal & Child Health Public Health Leadership Institute (MCH-PHLI)
An executive-education program designed to significantly expand self-awareness and quickly build practical skills for effectively leading, managing people, and building partnerships, to advocate for and create the MCH systems of tomorrow; designed to improve leadership capacity and teaching how to create an organizational culture that engages and motivates others. NCFPP Partnership Activities: The NCFPP participates in the institute planning process;supports and provides TA to Family Fellows; reviews leadership curriculum on family/professional partnerships
National Academy for State Health Policy
An independent academy of state health policymakers working together to identify emerging issues, develop policy solutions, and improve state health policy and practice. NCFPP Partnership Activities: The NCFPP Co-sponsored a teleconference on early childhood health and has served on Workgroup Advisory Committee for project on Recommendations to District of Columbia on Improving Child Health Quality through HIT and Quality Measurement
National Association of Children's Hospitals and Related Institutions (NACHRI)
Not-for-profit organizations of children's hospitals, large pediatric units of medical centers and related health systems, including those that specialize in rehabilitative care of children with serious chronic or congenital illnesses. They serve as a voice for health systems devoted to the well-being of America's 70 million children and their families and work to ensure children's access to health care and the continuing ability of children's hospitals to provide services needed by children. NCFPP Partnership Activities: Ongoing discussions about joint activities
National Initiative for Children's Healthcare Quality (NICHQ)
An independent, not-for-profit, quality improvement organization dedicated to achieving a world in which all children receive the high quality healthcare they need. Family Voices Partnership Activities: The NCFPP participates on Advisory Board and Sickle Cell project.
White House Offices on Disability Policy and Public Engagement
NCFPP Partnership Activities: The NCFPP disseminates the White House Newsletter for Young Americans and conference calls seeking input from youth on various topics, including specific outreach to rural and Native American youth and young adults